Chasing Doctors

Hailee,

Hi! Welcome to the forum!

I also have / had a dural AVF with what turned out to be a narrowing of my right transverse sinus, which my doctor concluded I had probably had a thrombus at some point and that had led to the development or aggravation of my DAVF. See my story here. You sound a bit similar to me.

I had an embolisation in April and I’m feeling better month by month (rather than day by day).

I found that cutting out stimulants (e.g. smoking, coffee/caffeine, chocolate,…) took the pressure off significantly, though my AVM was clearly busily growing or something over time.

Keep us posted as to how you get on!

Richard