# UK AVM Awareness **URL:** https://avmsurvivors.org/c/regional-groups/uk-avm-awareness/31.md [Latest](https://avmsurvivors.org/latest.md) · [Categories](https://avmsurvivors.org/categories.md) · [Tags](https://avmsurvivors.org/tags.md) --- ## [About the UK AVM Awareness category](https://avmsurvivors.org/t/about-the-uk-avm-awarene-category/14851)
**Author:** [@ModSupport](https://avmsurvivors.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [November 7, 2021, 9:59am UTC](https://avmsurvivors.org/t/about-the-uk-avm-awarene-category/14851 "2021-11-07T09:59:11Z")
This is a group for UK Members to discuss things that are relevant to people based in the UK with AVM's, The following list is of recommended doctors/surgeons based in the UK: Mr Daniel Morris , University of Wales Mr… --- ## [Anyone in Scotland with a SDAVF?](https://avmsurvivors.org/t/anyone-in-scotland-with-a-sdavf/32387)
**Author:** [@bridget3](https://avmsurvivors.org/u/bridget3)\ **Replies:** 4\ **Last updated:** [September 29, 2026, 4:30pm UTC](https://avmsurvivors.org/t/anyone-in-scotland-with-a-sdavf/32387 "2026-09-29T16:30:31Z")
I’m on the east coast of Scotland. Anyone else in Scotland with a SDAVF? --- ## [Arena, My Brain: After the Rupture](https://avmsurvivors.org/t/arena-my-brain-after-the-rupture/32168)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 3\ **Last updated:** [July 1, 2026, 5:32pm UTC](https://avmsurvivors.org/t/arena-my-brain-after-the-rupture/32168 "2026-07-01T17:32:14Z")
The television, if you’re not motivated by men’s football, is a dearth at the moment. So last night I travelled through Film 4 and BBC iPlayer looking for things to watch. Yesterday, I felt that a programme about a str… --- ## [AVM - suggestions gratefully received](https://avmsurvivors.org/t/avm-suggestions-gratefully-received/29149)
**Author:** [@RoseP](https://avmsurvivors.org/u/RoseP)\ **Replies:** 38\ **Last updated:** [February 1, 2025, 9:13pm UTC](https://avmsurvivors.org/t/avm-suggestions-gratefully-received/29149 "2025-02-01T21:13:13Z")
Good morning all, I’m a 68 year old with a few ailments but mainly reasonably healthy. On May 17th 2023 I suffered a partial seizure out of the blue, for around 25 - 30 minutes I couldn’t speak properly and, according t… --- ## [Channel 5 Documentary Series - Trauma Room One](https://avmsurvivors.org/t/channel-5-documentary-series-trauma-room-one/29840)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 0\ **Last updated:** [June 5, 2024, 10:09pm UTC](https://avmsurvivors.org/t/channel-5-documentary-series-trauma-room-one/29840 "2024-06-05T22:09:47Z")
I’ve just watched episode four of this series and (provided the prospect of surgery isn’t wholly frightening, and honestly we all know that it is) it may be a useful series to have a look at to understand neurosurgery an… --- ## [Edinburgh](https://avmsurvivors.org/t/edinburgh/29587)
**Author:** [@jap001](https://avmsurvivors.org/u/jap001)\ **Replies:** 0\ **Last updated:** [March 20, 2024, 12:04pm UTC](https://avmsurvivors.org/t/edinburgh/29587 "2024-03-20T12:04:10Z")
Anyone here living in/around Edinburgh, Scotland? --- ## [Worried Nan](https://avmsurvivors.org/t/worried-nan/28465)
**Author:** [@Jaxx](https://avmsurvivors.org/u/Jaxx)\ **Replies:** 24\ **Last updated:** [October 4, 2023, 1:58pm UTC](https://avmsurvivors.org/t/worried-nan/28465 "2023-10-04T13:58:10Z")
My 6 year old granddaughter has been diagnosed with a 2cm in the superiority aspect of the left post central gyrus.Had angiography yesterday and now waiting for appointment to decide treatment. The AVM is causing epileps… --- ## [BBC News - Laser brain therapy offers hope to epilepsy sufferers in England](https://avmsurvivors.org/t/bbc-news-laser-brain-therapy-offers-hope-to-epilepsy-sufferers-in-england/27743)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 5\ **Last updated:** [October 24, 2022, 1:39am UTC](https://avmsurvivors.org/t/bbc-news-laser-brain-therapy-offers-hope-to-epilepsy-sufferers-in-england/27743 "2022-10-24T01:39:58Z")
This looks interesting for some people… --- ## [London AVMer meet up](https://avmsurvivors.org/t/london-avmer-meet-up/18382)
**Author:** [@corrine](https://avmsurvivors.org/u/corrine)\ **Replies:** 41\ **Last updated:** [December 4, 2017, 9:00pm UTC](https://avmsurvivors.org/t/london-avmer-meet-up/18382 "2017-12-04T21:00:09Z")
Hi All, I was wondering if anyone would be interested in a meet up for those near by to london? Would be great to actually meet people who also have/had an AVM or know someone close to them who has? Are there any events… --- ## [Acquired Brain Injury support -- call for evidence, UK](https://avmsurvivors.org/t/acquired-brain-injury-support-call-for-evidence-uk/26856)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 0\ **Last updated:** [March 17, 2022, 7:38pm UTC](https://avmsurvivors.org/t/acquired-brain-injury-support-call-for-evidence-uk/26856 "2022-03-17T19:38:07Z")
This has been announced by the UK Government. May be useful for this community for people in the UK to put their views. Albeit it doesn’t appear to be interested in stroke patients. There’s an easy-read version as wel… --- ## [Advice about Dr Rangi (London) - DAVF](https://avmsurvivors.org/t/advice-about-dr-rangi-london-davf/26300)
**Author:** [@srmid](https://avmsurvivors.org/u/srmid)\ **Replies:** 15\ **Last updated:** [December 11, 2021, 3:12pm UTC](https://avmsurvivors.org/t/advice-about-dr-rangi-london-davf/26300 "2021-12-11T15:12:00Z")
Hello I am new here. my husband was diagnosed with DAVF and scheduled for embolisation. My husband is fit without symptoms save for an episode of vertigo and increase in migraines. He is being treated by Dr Prem Rangi … --- ## [How have you found diagnosis and treatment in the U.K. and what has your aftercare been like?](https://avmsurvivors.org/t/how-have-you-found-diagnosis-and-treatment-in-the-u-k-and-what-has-your-aftercare-been-like/16889)
**Author:** [@Laura80](https://avmsurvivors.org/u/Laura80)\ **Replies:** 9\ **Last updated:** [August 30, 2021, 12:30am UTC](https://avmsurvivors.org/t/how-have-you-found-diagnosis-and-treatment-in-the-u-k-and-what-has-your-aftercare-been-like/16889 "2021-08-30T00:30:56Z")
In 2014 aged 34 I was diagnosed with an AVM after two grand mal seizures but years of debilitating migraine headaches that were said to be part of other conditions although I visited my GP several times in 2014 knowing t… --- ## [Gamma knife sheffield](https://avmsurvivors.org/t/gamma-knife-sheffield/25636)
**Author:** [@eternalsunshine](https://avmsurvivors.org/u/eternalsunshine)\ **Replies:** 20\ **Last updated:** [May 24, 2021, 2:07pm UTC](https://avmsurvivors.org/t/gamma-knife-sheffield/25636 "2021-05-24T14:07:19Z")
Hi I’m wondering. Are you asleep during the actual radiation? Is the ‘crown’ placed whilst you’re awake? Do they shave your hair? Thanks in advance x --- ## [Private Consultation UK](https://avmsurvivors.org/t/private-consultation-uk/21529)
**Author:** [@jenmaireee](https://avmsurvivors.org/u/jenmaireee)\ **Replies:** 2\ **Last updated:** [December 4, 2018, 9:49pm UTC](https://avmsurvivors.org/t/private-consultation-uk/21529 "2018-12-04T21:49:53Z")
Hi there, I’ve posted a couple of times now, I’m not diagnosed yet but I’m wanting to be looked at. My elder sister had a rupture in her early 30’s, twice, and I’m having similar symptoms to what she experienced beforeha… --- ## [ENT Referral Help](https://avmsurvivors.org/t/ent-referral-help/21504)
**Author:** [@jenmaireee](https://avmsurvivors.org/u/jenmaireee)\ **Replies:** 7\ **Last updated:** [December 1, 2018, 8:49pm UTC](https://avmsurvivors.org/t/ent-referral-help/21504 "2018-12-01T20:49:32Z")
Hello, I have been referred to ENT today. I have been having a deep humming noise in my left ear, pain deep in my ear and around it, a weird whooshing sound in my neck (that no doctors are caring about), light headedness… --- ## [Hydrocephalus](https://avmsurvivors.org/t/hydrocephalus/19094)
**Author:** [@mrs\_sarah\_m](https://avmsurvivors.org/u/mrs_sarah_m)\ **Replies:** 8\ **Last updated:** [July 27, 2018, 10:49pm UTC](https://avmsurvivors.org/t/hydrocephalus/19094 "2018-07-27T22:49:26Z")
I would be grateful to hear anyone’s experience with hydrocephalus . My daughter has multiple avms and this year has developed hydrocephalus . It took over three months to get to the diagnosis and she was in a severe sta… --- ## [July 7th London Meet Up](https://avmsurvivors.org/t/july-7th-london-meet-up/20299)
**Author:** [@corrine](https://avmsurvivors.org/u/corrine)\ **Replies:** 15\ **Last updated:** [July 6, 2018, 6:23am UTC](https://avmsurvivors.org/t/july-7th-london-meet-up/20299 "2018-07-06T06:23:21Z")
Hey everyone! Time for another meet up! We will be going for lunch at 1pm on the 7th of July :smiley: The venue to be confirmed soon! Please let me know of any requirements for the venue. I look forward to seeing you … --- ## [30th June Nottingham meetup](https://avmsurvivors.org/t/30th-june-nottingham-meetup/20345)
**Author:** [@corrine](https://avmsurvivors.org/u/corrine)\ **Replies:** 5\ **Last updated:** [June 20, 2018, 8:07pm UTC](https://avmsurvivors.org/t/30th-june-nottingham-meetup/20345 "2018-06-20T20:07:11Z")
Hello everyone, The plan for this meetup is to go for lunch at a European/French resturant called Bistrot Pierre. There is a set lunch price menu which is great! It is vegetarian/vegan/gluten free friendly. Disabled li… --- ## [Avm! My dear friend needs help](https://avmsurvivors.org/t/avm-my-dear-friend-needs-help/20109)
**Author:** [@Lorena](https://avmsurvivors.org/u/Lorena)\ **Replies:** 19\ **Last updated:** [May 12, 2018, 7:09pm UTC](https://avmsurvivors.org/t/avm-my-dear-friend-needs-help/20109 "2018-05-12T19:09:44Z")
Hello, i m new here, but i am desperate, my childhood friend, she is now aged 25 is suffering from a really rare AVM! She needs to be operated, but no one did accept to do it! Her life depends on it! She tried diffrent c… --- ## [My Amazing Brain - BBC Horizon](https://avmsurvivors.org/t/my-amazing-brain-bbc-horizon/19466)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 1\ **Last updated:** [February 10, 2018, 6:08pm UTC](https://avmsurvivors.org/t/my-amazing-brain-bbc-horizon/19466 "2018-02-10T18:08:42Z")
I watched this excellent and very encouraging programme on BBC 2 this evening about Richard Gray, a former U.N. peace keeper and soldier, who had a stroke about 4 or 5 years ago and his recovery, filmed by his wife. I’m… --- ## [Birmingham AVMer meet up](https://avmsurvivors.org/t/birmingham-avmer-meet-up/19132)
**Author:** [@corrine](https://avmsurvivors.org/u/corrine)\ **Replies:** 10\ **Last updated:** [January 18, 2018, 10:08pm UTC](https://avmsurvivors.org/t/birmingham-avmer-meet-up/19132 "2018-01-18T22:08:05Z")
Hi All :smile: I have organised another AVMer meet up! This time to try to make it more of a central location - we will be meeting up in Birmingham on Saturday 20th Jan. The main plan is to go for a lunch at 1pm and c… --- ## [My Anniversary](https://avmsurvivors.org/t/my-anniversary/18449)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 3\ **Last updated:** [October 4, 2017, 7:28pm UTC](https://avmsurvivors.org/t/my-anniversary/18449 "2017-10-04T19:28:06Z")
Hey, I just realised that it is exactly a year on Saturday that I joined the AVM Survivors community. It has been a very interesting journey over that year and I want to say it has been great to share some time with pe… --- ## [Explaining Catheter Embolisation](https://avmsurvivors.org/t/explaining-catheter-embolisation/17072)
**Author:** [@DickD](https://avmsurvivors.org/u/DickD)\ **Replies:** 29\ **Last updated:** [April 6, 2017, 10:20pm UTC](https://avmsurvivors.org/t/explaining-catheter-embolisation/17072 "2017-04-06T22:20:26Z")
I’m up for a catheter embolisation procedure next week… I explained it to my dad as a bit like an extreme form of keyhole surgery. You’ll never guess what he sent me… :joy: Love all, Richard --- ## [Can I share my blog on here? Not sure if it's in the right category](https://avmsurvivors.org/t/can-i-share-my-blog-on-here-not-sure-if-its-in-the-right-category/15630)
**Author:** [@Jessica8](https://avmsurvivors.org/u/Jessica8)\ **Replies:** 1\ **Last updated:** [September 11, 2016, 8:36pm UTC](https://avmsurvivors.org/t/can-i-share-my-blog-on-here-not-sure-if-its-in-the-right-category/15630 "2016-09-11T20:36:55Z")
Hi I was wondering If I can share this as it does include names of hospitals etc. It is just my experience with AVM stuff. :slight\_smile: