# Spinal AVM **URL:** https://avmsurvivors.org/c/types-of-avms/spinal-avm/41.md [Latest](https://avmsurvivors.org/latest.md) · [Categories](https://avmsurvivors.org/categories.md) · [Tags](https://avmsurvivors.org/tags.md) --- ## [About the Spinal AVM category](https://avmsurvivors.org/t/about-the-spinal-avm-category/15670)
**Author:** [@ModSupport](https://avmsurvivors.org/u/ModSupport)\ **Replies:** 0
This category is for people with a spinal AVM to collaborate, share stories, find related stories. Make sure you also click on @Spinal and join the group to stay informed of new posts by other spinal members. --- ## [Spinal Dural AV Fistula (T8) – 7 Months Post-Surgery. Looking for Others With Similar Experiences](https://avmsurvivors.org/t/spinal-dural-av-fistula-t8-7-months-post-surgery-looking-for-others-with-similar-experiences/32449)
**Author:** [@ypres](https://avmsurvivors.org/u/ypres)\ **Replies:** 7\ **Last updated:** [October 16, 2026, 5:00am UTC](https://avmsurvivors.org/t/spinal-dural-av-fistula-t8-7-months-post-surgery-looking-for-others-with-similar-experiences/32449 "2026-10-16T05:00:25Z")
Title: Spinal Dural AV Fistula (T8) – 7 Months Post-Surgery. Looking for Others With Similar Experiences Hey everyone, I’m 31 years old, and I wanted to share my experience with a spinal dural arteriovenous fistula (dA… --- ## [Does the feeling of trauma ever really disappear?!](https://avmsurvivors.org/t/does-the-feeling-of-trauma-ever-really-disappear/32385)
**Author:** [@bridget3](https://avmsurvivors.org/u/bridget3)\ **Replies:** 5\ **Last updated:** [October 8, 2026, 7:29am UTC](https://avmsurvivors.org/t/does-the-feeling-of-trauma-ever-really-disappear/32385 "2026-10-08T07:29:24Z")
I had a weird experience today. Went back into hospital for the first time since my SDAVF had suddenly stopped my legs from working two years ago. Today’s trip was only a day surgery-based angiogram, just to check how we… --- ## [Spinal AVM at T9 that has bled](https://avmsurvivors.org/t/spinal-avm-at-t9-that-has-bled/32404)
**Author:** [@sonjav](https://avmsurvivors.org/u/sonjav)\ **Replies:** 23\ **Last updated:** [October 6, 2026, 9:41pm UTC](https://avmsurvivors.org/t/spinal-avm-at-t9-that-has-bled/32404 "2026-10-06T21:41:24Z")
Hi, my 29 year old daughter suffered a brain bleed as well as an AVM bleed in her spine at T9 on July 31, 2026. She had a lot of swelling from T2 to T12 which we found out has already reduced to T5 to T12 a month later.… --- ## [Managing Urinary Retention due to Spinal AVF](https://avmsurvivors.org/t/managing-urinary-retention-due-to-spinal-avf/32370)
**Author:** [@dbasak](https://avmsurvivors.org/u/dbasak)\ **Replies:** 5\ **Last updated:** [September 30, 2026, 8:07pm UTC](https://avmsurvivors.org/t/managing-urinary-retention-due-to-spinal-avf/32370 "2026-09-30T20:07:21Z")
Hi everyone! I’m new here and a caregiver for my dad, a 71 yo patient who is recovering from Spinal AVF after undergoing Embolism 3 months ago. If you want to read our story, I wrote an intro here → Hello from a caregive… --- ## [Hi from Canada- grateful to have found you all](https://avmsurvivors.org/t/hi-from-canada-grateful-to-have-found-you-all/32267)
**Author:** [@Tanya13](https://avmsurvivors.org/u/Tanya13)\ **Replies:** 11\ **Last updated:** [September 29, 2026, 5:22pm UTC](https://avmsurvivors.org/t/hi-from-canada-grateful-to-have-found-you-all/32267 "2026-09-29T17:22:35Z")
Hi everyone, I’m Tanya, from Canada. I’m really grateful to have found this community after what has felt like a long and confusing road trying to understand what has been happening with my body. I was recently diagnose… --- ## [Hello from a caregiver of Spinal AVF survivor](https://avmsurvivors.org/t/hello-from-a-caregiver-of-spinal-avf-survivor/32369)
**Author:** [@dbasak](https://avmsurvivors.org/u/dbasak)\ **Replies:** 4\ **Last updated:** [September 29, 2026, 11:10am UTC](https://avmsurvivors.org/t/hello-from-a-caregiver-of-spinal-avf-survivor/32369 "2026-09-29T11:10:29Z")
Hi everyone, this is Deb! I’m new here and wanted to introduce myself and my dad who is an Spinal AVM Fistula survivor. We are primarily based in India. My dad, 71 yo, is the patient and I was his primary caregiver unti… --- ## [Continuing spinal cord oedema post-embolisation (spinal dural AV fistula)](https://avmsurvivors.org/t/continuing-spinal-cord-oedema-post-embolisation-spinal-dural-av-fistula/32198)
**Author:** [@bridget3](https://avmsurvivors.org/u/bridget3)\ **Replies:** 18\ **Last updated:** [September 22, 2026, 5:25pm UTC](https://avmsurvivors.org/t/continuing-spinal-cord-oedema-post-embolisation-spinal-dural-av-fistula/32198 "2026-09-22T17:25:37Z")
My neurosurgeon is concerned that the latest MRI scan shows that my spinal cord oedema has improved slightly, but not resolved, one and a half years after having an embolisation for a spinal cord AV fistula (which was ar… --- ## [Hammer toes](https://avmsurvivors.org/t/hammer-toes/32352)
**Author:** [@Gumlan](https://avmsurvivors.org/u/Gumlan)\ **Replies:** 3\ **Last updated:** [September 20, 2026, 7:35pm UTC](https://avmsurvivors.org/t/hammer-toes/32352 "2026-09-20T19:35:01Z")
Hello, T11 here, embolization and laminectomy in 2018. Just curious if people have dealt with hammer / claw toes. I’ve been going to podiatrist, who recommended orthotics, supportive shoes with wide toe box. He also re… --- ## [Post SDAVF. What can i reasonably expect, regarding recovery?](https://avmsurvivors.org/t/post-sdavf-what-can-i-reasonably-expect-regarding-recovery/32134)
**Author:** [@Gary](https://avmsurvivors.org/u/Gary)\ **Replies:** 17\ **Last updated:** [September 19, 2026, 2:13am UTC](https://avmsurvivors.org/t/post-sdavf-what-can-i-reasonably-expect-regarding-recovery/32134 "2026-09-19T02:13:03Z")
Hello. My name is Gareth (Gary) and 3 weeks ago, I had an Embolization on my SDAVF. From swollen bottom brain stem to T-7. My symptoms and history should be in my profile, hopefully? Sorry if not, and I’ll edit this pos… --- ## [SDAVF MRI Report vs Clinical improvement](https://avmsurvivors.org/t/sdavf-mri-report-vs-clinical-improvement/32330)
**Author:** [@Harika](https://avmsurvivors.org/u/Harika)\ **Replies:** 5\ **Last updated:** [September 15, 2026, 2:58pm UTC](https://avmsurvivors.org/t/sdavf-mri-report-vs-clinical-improvement/32330 "2026-09-15T14:58:22Z")
Hi everyone, I’d really appreciate your experiences with SDAVF. I had my SDAVF embolisation on 19 December 2025. Before treatment, I had numbness on the lateral part of my right foot, right inner-thigh numbness, and cal… --- ## [Notable decline, cervical SEDAVF? & medical ping pong in NZ](https://avmsurvivors.org/t/notable-decline-cervical-sedavf-medical-ping-pong-in-nz/32110)
**Author:** [@NotAKiwi](https://avmsurvivors.org/u/NotAKiwi)\ **Replies:** 24\ **Last updated:** [August 23, 2026, 8:24pm UTC](https://avmsurvivors.org/t/notable-decline-cervical-sedavf-medical-ping-pong-in-nz/32110 "2026-08-23T20:24:14Z")
Hi, Sorry if this is a bit long-winded. I am not a Kiwi but I am living in NZ. Before we came back here, in 2019 I had a brain scan as I kept feeling like I was falling slightly to my right. Prior to that I had had odd … --- ## [Update cervical spine c-3 t-1](https://avmsurvivors.org/t/update-cervical-spine-c-3-t-1/32260)
**Author:** [@Jimmyslink](https://avmsurvivors.org/u/Jimmyslink)\ **Replies:** 5\ **Last updated:** [August 6, 2026, 8:32pm UTC](https://avmsurvivors.org/t/update-cervical-spine-c-3-t-1/32260 "2026-08-06T20:32:02Z")
Had surgery Monday to disconnect artery and vein and now am home!!! Surgery was a success can still walk and still have bladder bowel function just pain in neck where surgery was performed. I’m aware of the dark places t… --- ## [5 months post cervical avm rupture](https://avmsurvivors.org/t/5-months-post-cervical-avm-rupture/32257)
**Author:** [@mikefazz](https://avmsurvivors.org/u/mikefazz)\ **Replies:** 2\ **Last updated:** [August 4, 2026, 4:55pm UTC](https://avmsurvivors.org/t/5-months-post-cervical-avm-rupture/32257 "2026-08-04T16:55:30Z")
In a weird predicament. I am getting married in 3 weeks, and am extremely grateful to be healthy enough to properly celebrate. I have rapidly improved and have no new symptoms EXCEPT some very minor shaking/trembling in … --- ## [Seems legs Numbness recede after 4 year lebactomy of spinal avf](https://avmsurvivors.org/t/seems-legs-numbness-recede-after-4-year-lebactomy-of-spinal-avf/32251)
**Author:** [@Ahmed](https://avmsurvivors.org/u/Ahmed)\ **Replies:** 5\ **Last updated:** [August 2, 2026, 10:55am UTC](https://avmsurvivors.org/t/seems-legs-numbness-recede-after-4-year-lebactomy-of-spinal-avf/32251 "2026-08-02T10:55:42Z")
Continuing the discussion from About the Spinal AVM category: Hi , spinal davf affecties these days i feel sometime legs numbness and heavyness recedes quite towards normalcy and my walk gets better but lateron back to… --- ## [Increased edema after embolization](https://avmsurvivors.org/t/increased-edema-after-embolization/32220)
**Author:** [@sanyaa](https://avmsurvivors.org/u/sanyaa)\ **Replies:** 12\ **Last updated:** [August 1, 2026, 11:43am UTC](https://avmsurvivors.org/t/increased-edema-after-embolization/32220 "2026-08-01T11:43:23Z")
Hi all. 24 F, from India. I was diagnosed with spinal AVM in 2021 due to back pain but the doctors deemed it too risky for embolization and asked me to go on with life as I had no symptoms. In 2024 it ruptured and caused… --- ## [Outcomes from SDAVF](https://avmsurvivors.org/t/outcomes-from-sdavf/32228)
**Author:** [@jules2](https://avmsurvivors.org/u/jules2)\ **Replies:** 3\ **Last updated:** [July 28, 2026, 12:53am UTC](https://avmsurvivors.org/t/outcomes-from-sdavf/32228 "2026-07-28T00:53:48Z")
I’m always reluctant to post about this subject. So many people asking so many questions of such a rare diagnosis. There are days when I want to share our experiences with my husbands SDAVF (C3-T6) but it already comes… --- ## [Update spinal fistula](https://avmsurvivors.org/t/update-spinal-fistula/32214)
**Author:** [@Jimmyslink](https://avmsurvivors.org/u/Jimmyslink)\ **Replies:** 8\ **Last updated:** [July 25, 2026, 9:57pm UTC](https://avmsurvivors.org/t/update-spinal-fistula/32214 "2026-07-25T21:57:06Z")
Diagnosed 6 weeks ago with c3-t1 fistula. After my first visit with neurosurgeon today am going to be admitted to Nottingham hospital in a couple of days for another mri .. angiogram and then either Embolization or surge… --- ## [One year post embolization spinal](https://avmsurvivors.org/t/one-year-post-embolization-spinal/29936)
**Author:** [@hmg](https://avmsurvivors.org/u/hmg)\ **Replies:** 4\ **Last updated:** [July 22, 2026, 1:55am UTC](https://avmsurvivors.org/t/one-year-post-embolization-spinal/29936 "2026-07-22T01:55:26Z")
Celebrating one year since being diagnosed with a spinal AVF (neck) and receiving spinal dural embolization - 14 platinum coils. What a year it has been…so grateful to be on the other side of it all. Recovery is still a … --- ## [Cervical spinal dural arteriovenous fistula](https://avmsurvivors.org/t/cervical-spinal-dural-arteriovenous-fistula/32166)
**Author:** [@Jimmyslink](https://avmsurvivors.org/u/Jimmyslink)\ **Replies:** 13\ **Last updated:** [June 29, 2026, 12:42pm UTC](https://avmsurvivors.org/t/cervical-spinal-dural-arteriovenous-fistula/32166 "2026-06-29T12:42:36Z")
Cervical spinal dural arteriovenous fistula c-3 to t-1 prominent blood flow voids overlaying dorsal aspect of spinal cord. Worried scared don’t know what to expect as haven’t seen anyone yet. --- ## [Spinal Dural AVF victim - my story so far](https://avmsurvivors.org/t/spinal-dural-avf-victim-my-story-so-far/31772)
**Author:** [@DavidH](https://avmsurvivors.org/u/DavidH)\ **Replies:** 11\ **Last updated:** [June 28, 2026, 5:33am UTC](https://avmsurvivors.org/t/spinal-dural-avf-victim-my-story-so-far/31772 "2026-06-28T05:33:12Z")
Hello everyone Long time reader, first time poster, to start with a massive cliché! My name is David, I live in the North East of England in the UK, and I was diagnosed with a spinal dural avf back in June last year. T… --- ## [Cervical Neck AVM and HHT](https://avmsurvivors.org/t/cervical-neck-avm-and-hht/32157)
**Author:** [@sunnysue](https://avmsurvivors.org/u/sunnysue)\ **Replies:** 11\ **Last updated:** [June 27, 2026, 12:04pm UTC](https://avmsurvivors.org/t/cervical-neck-avm-and-hht/32157 "2026-06-27T12:04:47Z")
Hi @Stephanie20 My story, I also have an inoperable cervical AVM from C1–C5. I am actually very familiar with cervical/neck AVMs, as I have been living with mine for over 25 years. Mine started completely out of nowhe… --- ## [28 y/o- spinal AVM C4/C5](https://avmsurvivors.org/t/28-y-o-spinal-avm-c4-c5/31924)
**Author:** [@mikefazz](https://avmsurvivors.org/u/mikefazz)\ **Replies:** 15\ **Last updated:** [May 22, 2026, 6:53pm UTC](https://avmsurvivors.org/t/28-y-o-spinal-avm-c4-c5/31924 "2026-05-22T18:53:44Z")
Hello! New to the survivor group. I am a 28 year old male from NJ who about 3 weeks ago suffered a spinal cord AVM rupture in C4/C5 intramedullary. Long story short, I had extreme radiating pain in my right arm, followed… --- ## [Embolization vs Surgery. Advice Requested (T10/T11 Spinal AVM)](https://avmsurvivors.org/t/embolization-vs-surgery-advice-requested-t10-t11-spinal-avm/31958)
**Author:** [@DrewB](https://avmsurvivors.org/u/DrewB)\ **Replies:** 7\ **Last updated:** [April 8, 2026, 6:02pm UTC](https://avmsurvivors.org/t/embolization-vs-surgery-advice-requested-t10-t11-spinal-avm/31958 "2026-04-08T18:02:38Z")
Hi all, First time posting here. Sorry to all those who have or are experiencing the symptoms of their spinal AVM and recovery. I have to make a decision on surgery vs embolization in the coming week or two. Hoping to … --- ## [Spinal Cord Injury | AVM rupture](https://avmsurvivors.org/t/spinal-cord-injury-avm-rupture/31964)
**Author:** [@Monika\_Wright](https://avmsurvivors.org/u/Monika_Wright)\ **Replies:** 2\ **Last updated:** [April 7, 2026, 6:11pm UTC](https://avmsurvivors.org/t/spinal-cord-injury-avm-rupture/31964 "2026-04-07T18:11:11Z")
In 2017, just days before my 18th birthday, my life changed in an instant. What started as a simple hike with a friend quickly turned into something unimaginable. We chose a path that wasn’t safe. She made it across a w… --- ## [Has anyone had a spinal laminectomy? What was your experience?](https://avmsurvivors.org/t/has-anyone-had-a-spinal-laminectomy-what-was-your-experience/31736)
**Author:** [@Rachel7](https://avmsurvivors.org/u/Rachel7)\ **Replies:** 16\ **Last updated:** [April 3, 2026, 11:28am UTC](https://avmsurvivors.org/t/has-anyone-had-a-spinal-laminectomy-what-was-your-experience/31736 "2026-04-03T11:28:28Z")
I have a spinal AVM in the C7-T1 region with mild sensory symptoms which are slowly getting worse. My doctor in Canada recommended not getting surgery as the symptoms are mild but we got a second opinion from a more exp… --- ## [Avm in spine front C7 15 year old . please help](https://avmsurvivors.org/t/avm-in-spine-front-c7-15-year-old-please-help/27678)
**Author:** [@natalee](https://avmsurvivors.org/u/natalee)\ **Replies:** 19\ **Last updated:** [March 26, 2026, 3:18pm UTC](https://avmsurvivors.org/t/avm-in-spine-front-c7-15-year-old-please-help/27678 "2026-03-26T15:18:13Z")
hi guys , i’m writing to you to see if you have any guidance or recommendations of surgeons , treatments, previous experiences . my 15 year old nephew has become incredibly unwell with a spinal avm in c7 of his spine .… --- ## [Spinal DAVF onset of new symptoms](https://avmsurvivors.org/t/spinal-davf-onset-of-new-symptoms/31852)
**Author:** [@DavidH](https://avmsurvivors.org/u/DavidH)\ **Replies:** 11\ **Last updated:** [March 26, 2026, 3:57am UTC](https://avmsurvivors.org/t/spinal-davf-onset-of-new-symptoms/31852 "2026-03-26T03:57:24Z")
Hi all Just posting an update as to how my recovery is going so far and would appreciate some input from all of you. As per my initial posts - T7 Spinal DAVF operated on in June last year; first 6 months of recovery qu… --- ## [Nerve Conduction Test?](https://avmsurvivors.org/t/nerve-conduction-test/31826)
**Author:** [@Ahmed](https://avmsurvivors.org/u/Ahmed)\ **Replies:** 1\ **Last updated:** [February 27, 2026, 11:08am UTC](https://avmsurvivors.org/t/nerve-conduction-test/31826 "2026-02-27T11:08:20Z")
Hi All , Need a bit advise from Spinal Dura Avf guys who went thru surgery As I went thru t6-7 in March 2022 Toronto And no recurrence in mri found till 2025 but my legs got initially worst but later in 6 months return b… --- ## [Mobility supports for 62 year old spinal AVM survivor](https://avmsurvivors.org/t/mobility-supports-for-62-year-old-spinal-avm-survivor/31813)
**Author:** [@Ra.80](https://avmsurvivors.org/u/Ra.80)\ **Replies:** 5\ **Last updated:** [February 22, 2026, 7:42pm UTC](https://avmsurvivors.org/t/mobility-supports-for-62-year-old-spinal-avm-survivor/31813 "2026-02-22T19:42:52Z")
My father had an AVM in the lower part of his spine in 2002 and after multiple surgeries and treatments was able to regain his walking. But now, he is 62 years old and his spasms are getting much worse, even with a cane… [Next page](https://avmsurvivors.org/c/types-of-avms/spinal-avm/41.md?page=1)