# Latest **URL:** https://avmsurvivors.org/latest.md [Latest](https://avmsurvivors.org/latest.md) · [Categories](https://avmsurvivors.org/categories.md) · [Tags](https://avmsurvivors.org/tags.md) --- ## [Does the feeling of trauma ever really disappear?!](https://avmsurvivors.org/t/does-the-feeling-of-trauma-ever-really-disappear/32385)
**Author:** [@bridget3](https://avmsurvivors.org/u/bridget3)\ **Replies:** 0\ **Last updated:** [September 22, 2026, 9:34pm UTC](https://avmsurvivors.org/t/does-the-feeling-of-trauma-ever-really-disappear/32385 "2026-09-22T21:34:41Z")
I had a weird experience today. Went back into hospital for the first time since my SDAVF had suddenly stopped my legs from working two years ago. Today’s trip was only a day surgery-based angiogram, just to check how we… --- ## [Pregnancy](https://avmsurvivors.org/t/pregnancy/29831)
**Author:** [@Sarah26](https://avmsurvivors.org/u/Sarah26)\ **Replies:** 21\ **Last updated:** [September 22, 2026, 9:24pm UTC](https://avmsurvivors.org/t/pregnancy/29831 "2026-09-22T21:24:26Z")
Hi women on this platform! Some time before my AVM was discovered I came of birth control. Obviously my diagnosis put things on hold. I now have been treated with Gamma Knife and I did briefly talk about pregnancy with… --- ## [AVM on left side of brain](https://avmsurvivors.org/t/avm-on-left-side-of-brain/32381)
**Author:** [@Rob](https://avmsurvivors.org/u/Rob)\ **Replies:** 1\ **Last updated:** [September 22, 2026, 6:49pm UTC](https://avmsurvivors.org/t/avm-on-left-side-of-brain/32381 "2026-09-22T18:49:22Z")
Hi I had a AVM on the left side of my brain in 2003 Gammon knife treatment which reduced the AVM down to a Pea size as it was too deep in the brain to operate on but for the last three months I’ve had 18 on the left sid… --- ## [Continuing spinal cord oedema post-embolisation (spinal dural AV fistula)](https://avmsurvivors.org/t/continuing-spinal-cord-oedema-post-embolisation-spinal-dural-av-fistula/32198)
**Author:** [@bridget3](https://avmsurvivors.org/u/bridget3)\ **Replies:** 18\ **Last updated:** [September 22, 2026, 5:25pm UTC](https://avmsurvivors.org/t/continuing-spinal-cord-oedema-post-embolisation-spinal-dural-av-fistula/32198 "2026-09-22T17:25:37Z")
My neurosurgeon is concerned that the latest MRI scan shows that my spinal cord oedema has improved slightly, but not resolved, one and a half years after having an embolisation for a spinal cord AV fistula (which was ar… --- ## [Meeting to Find Answers](https://avmsurvivors.org/t/meeting-to-find-answers/32351)
**Author:** [@Woods](https://avmsurvivors.org/u/Woods)\ **Replies:** 13\ **Last updated:** [September 22, 2026, 12:53pm UTC](https://avmsurvivors.org/t/meeting-to-find-answers/32351 "2026-09-22T12:53:28Z")
Hey Folks, I want to get to the point before I dive into the anecdote that spawned this idea. I was wondering if anybody out there was interested in meeting monthly on zoom to talk about their AVM and their symptoms/liv… --- ## [After embolization](https://avmsurvivors.org/t/after-embolization/32368)
**Author:** [@angelica](https://avmsurvivors.org/u/angelica)\ **Replies:** 6\ **Last updated:** [September 22, 2026, 7:12am UTC](https://avmsurvivors.org/t/after-embolization/32368 "2026-09-22T07:12:38Z")
Hi, on August 20 I had an embolization cause of an AVM in my frontal lobe. The last tests shows the brain is healing well but I feel dizzy, with no energy, unbalanced and I would like to know if any of you are experienci… --- ## [Life after DAVF Embolization - The mental battle](https://avmsurvivors.org/t/life-after-davf-embolization-the-mental-battle/32360)
**Author:** [@Sophia](https://avmsurvivors.org/u/Sophia)\ **Replies:** 26\ **Last updated:** [September 22, 2026, 3:00am UTC](https://avmsurvivors.org/t/life-after-davf-embolization-the-mental-battle/32360 "2026-09-22T03:00:52Z")
Hi All, Newbie here. I’m very grateful to have found this community as I’m feeling quite isolated In this discovery and life post embolization. I am very early into recovery, it will be 2 weeks this Friday since my Emb… --- ## [Help with diagnosis and choosing a surgeon](https://avmsurvivors.org/t/help-with-diagnosis-and-choosing-a-surgeon/32262)
**Author:** [@sunflower](https://avmsurvivors.org/u/sunflower)\ **Replies:** 2\ **Last updated:** [September 20, 2026, 11:57pm UTC](https://avmsurvivors.org/t/help-with-diagnosis-and-choosing-a-surgeon/32262 "2026-09-20T23:57:59Z")
About 2-3 months ago, through coincidence, a malformation was discovered in my brain. It hasnt bled yet and I am completely symptom free, therefore it has been very hard to grapple with the fact that I have to undergo a … --- ## [Hammer toes](https://avmsurvivors.org/t/hammer-toes/32352)
**Author:** [@Gumlan](https://avmsurvivors.org/u/Gumlan)\ **Replies:** 3\ **Last updated:** [September 20, 2026, 7:35pm UTC](https://avmsurvivors.org/t/hammer-toes/32352 "2026-09-20T19:35:01Z")
Hello, T11 here, embolization and laminectomy in 2018. Just curious if people have dealt with hammer / claw toes. I’ve been going to podiatrist, who recommended orthotics, supportive shoes with wide toe box. He also re… --- ## [Hello from a caregiver of Spinal AVF survivor](https://avmsurvivors.org/t/hello-from-a-caregiver-of-spinal-avf-survivor/32369)
**Author:** [@dbasak](https://avmsurvivors.org/u/dbasak)\ **Replies:** 3\ **Last updated:** [September 20, 2026, 7:16pm UTC](https://avmsurvivors.org/t/hello-from-a-caregiver-of-spinal-avf-survivor/32369 "2026-09-20T19:16:17Z")
Hi everyone, this is Deb! I’m new here and wanted to introduce myself and my dad who is an Spinal AVM Fistula survivor. We are primarily based in India. My dad, 71 yo, is the patient and I was his primary caregiver unti… --- ## [Need Help](https://avmsurvivors.org/t/need-help/30994)
**Author:** [@Aanie](https://avmsurvivors.org/u/Aanie)\ **Replies:** 16\ **Last updated:** [September 20, 2026, 5:58pm UTC](https://avmsurvivors.org/t/need-help/30994 "2026-09-20T17:58:03Z")
Hi everyone, We are extremely devastated.I dont know what to think need some insight and some success stories.My husband is diagnosed with avm through nocturnal seizure about a year ago,been on antiseizurenow. We are no… --- ## [Anyone’s AVM obliterated in under a year?](https://avmsurvivors.org/t/anyone-s-avm-obliterated-in-under-a-year/30788)
**Author:** [@BBarth](https://avmsurvivors.org/u/BBarth)\ **Replies:** 7\ **Last updated:** [September 20, 2026, 5:50pm UTC](https://avmsurvivors.org/t/anyone-s-avm-obliterated-in-under-a-year/30788 "2026-09-20T17:50:37Z")
My Gamma Knife procedure was today and it went surprisingly quick. It was estimated to be 45 minutes and ended up only being 25. Afterwards my doctor told me he’s had a few cases that were obliterated in under a year, in… --- ## [Tired and cognitive issues following gamma knife/ sterotactic suregery, Anyone else?](https://avmsurvivors.org/t/tired-and-cognitive-issues-following-gamma-knife-sterotactic-suregery-anyone-else/7071)
**Author:** [@Wilco](https://avmsurvivors.org/u/Wilco)\ **Replies:** 10\ **Last updated:** [September 20, 2026, 5:48pm UTC](https://avmsurvivors.org/t/tired-and-cognitive-issues-following-gamma-knife-sterotactic-suregery-anyone-else/7071 "2026-09-20T17:48:06Z")
Hi,Gamma knife treatment on small avm 8 months ago, have not been able to work since as I am so tired and my brain will not take any load. My head feels foggy. I have had 2 MRI's which showed minor and moderate improveme… --- ## [Radio Necrosis](https://avmsurvivors.org/t/radio-necrosis/18411)
**Author:** [@JoeShmoe](https://avmsurvivors.org/u/JoeShmoe)\ **Replies:** 9\ **Last updated:** [September 20, 2026, 5:41pm UTC](https://avmsurvivors.org/t/radio-necrosis/18411 "2026-09-20T17:41:32Z")
I have just been told i have swelling on the brain due to Radio Necrosis, some 6 years after StereoTactic RadioSurgery (SRS). Has caused epilepsy and some weakness down my right side Really dont know what to make of it,… --- ## [Effects face in future even Avm was cured permanently.and precautions](https://avmsurvivors.org/t/effects-face-in-future-even-avm-was-cured-permanently-and-precautions/32362)
**Author:** [@Bhavani](https://avmsurvivors.org/u/Bhavani)\ **Replies:** 3\ **Last updated:** [September 20, 2026, 1:22pm UTC](https://avmsurvivors.org/t/effects-face-in-future-even-avm-was-cured-permanently-and-precautions/32362 "2026-09-20T13:22:27Z")
I was 23 now on 8 year ago I got an avm in my right side of my brain that lead to my left body weakness.so I was undergone decompressive carniotomy with using levipil 500 medicine.later the doctors found risky to remove … --- ## [Hidden AVM - 14 years post diagnosis and left untreated](https://avmsurvivors.org/t/hidden-avm-14-years-post-diagnosis-and-left-untreated/32348)
**Author:** [@Stephtheunicorn](https://avmsurvivors.org/u/Stephtheunicorn)\ **Replies:** 3\ **Last updated:** [September 19, 2026, 8:04am UTC](https://avmsurvivors.org/t/hidden-avm-14-years-post-diagnosis-and-left-untreated/32348 "2026-09-19T08:04:20Z")
My AVM was diagnosed in 2012, 5 years after I had a scan that revealed my right eye socket being eroded away. By the time the doctors did the correct scan that actually showed my AVM (through the groin) as it doesn’t sho… --- ## [Sex work with a brain AVM](https://avmsurvivors.org/t/sex-work-with-a-brain-avm/30141)
**Author:** [@qqquinn](https://avmsurvivors.org/u/qqquinn)\ **Replies:** 13\ **Last updated:** [September 19, 2026, 4:23am UTC](https://avmsurvivors.org/t/sex-work-with-a-brain-avm/30141 "2026-09-19T04:23:08Z")
So yeah, sorry if this post is against the page’s rules, mods are all free to erase it if they feel it’s not appropiate for this forum. I just need to ask and vent a bit. Also try to be open minded while reading I’m 21 … --- ## [Post SDAVF. What can i reasonably expect, regarding recovery?](https://avmsurvivors.org/t/post-sdavf-what-can-i-reasonably-expect-regarding-recovery/32134)
**Author:** [@Gary](https://avmsurvivors.org/u/Gary)\ **Replies:** 17\ **Last updated:** [September 19, 2026, 2:13am UTC](https://avmsurvivors.org/t/post-sdavf-what-can-i-reasonably-expect-regarding-recovery/32134 "2026-09-19T02:13:03Z")
Hello. My name is Gareth (Gary) and 3 weeks ago, I had an Embolization on my SDAVF. From swollen bottom brain stem to T-7. My symptoms and history should be in my profile, hopefully? Sorry if not, and I’ll edit this pos… --- ## [Managing Urinary Retention due to Spinal AVF](https://avmsurvivors.org/t/managing-urinary-retention-due-to-spinal-avf/32370)
**Author:** [@dbasak](https://avmsurvivors.org/u/dbasak)\ **Replies:** 0\ **Last updated:** [September 18, 2026, 8:07pm UTC](https://avmsurvivors.org/t/managing-urinary-retention-due-to-spinal-avf/32370 "2026-09-18T20:07:14Z")
Hi everyone! I’m new here and a caregiver for my dad, a 71 yo patient who is recovering from Spinal AVF after undergoing Embolism 3 months ago. If you want to read our story, I wrote an intro here → Hello from a caregive… --- ## [Looking for Positive Recovery Stories](https://avmsurvivors.org/t/looking-for-positive-recovery-stories/32364)
**Author:** [@Elika](https://avmsurvivors.org/u/Elika)\ **Replies:** 4\ **Last updated:** [September 18, 2026, 6:46pm UTC](https://avmsurvivors.org/t/looking-for-positive-recovery-stories/32364 "2026-09-18T18:46:52Z")
Hi everyone, I’m 29 years old, and last November I was diagnosed with a dAVF on the left side. My main symptom was pulsatile tinnitus. I had two embolizations about six weeks apart, with my last one in January. I then … --- ## [Parents and AVM](https://avmsurvivors.org/t/parents-and-avm/32200)
**Author:** [@Leja](https://avmsurvivors.org/u/Leja)\ **Replies:** 12\ **Last updated:** [September 17, 2026, 7:03am UTC](https://avmsurvivors.org/t/parents-and-avm/32200 "2026-09-17T07:03:39Z")
This might be weird but my parents claimed to care about my AVM but never showed it. Even when I was in the hospital they would only sit there on their phones and when a nurse would come to give me medicine I would wince… --- ## [SDAVF MRI Report vs Clinical improvement](https://avmsurvivors.org/t/sdavf-mri-report-vs-clinical-improvement/32330)
**Author:** [@Harika](https://avmsurvivors.org/u/Harika)\ **Replies:** 5\ **Last updated:** [September 15, 2026, 2:58pm UTC](https://avmsurvivors.org/t/sdavf-mri-report-vs-clinical-improvement/32330 "2026-09-15T14:58:22Z")
Hi everyone, I’d really appreciate your experiences with SDAVF. I had my SDAVF embolisation on 19 December 2025. Before treatment, I had numbness on the lateral part of my right foot, right inner-thigh numbness, and cal… --- ## [Struggles and Successes After Surviving AVM’s](https://avmsurvivors.org/t/struggles-and-successes-after-surviving-avm-s/32340)
**Author:** [@JessiRose](https://avmsurvivors.org/u/JessiRose)\ **Replies:** 2\ **Last updated:** [September 12, 2026, 2:21pm UTC](https://avmsurvivors.org/t/struggles-and-successes-after-surviving-avm-s/32340 "2026-09-12T14:21:12Z")
I’m a 42 year old woman. I don’t remember much about my life before my first two AVM’s were discovered when I was only 5 years old. I was a lucky little girl to have them be discovered, however not so lucky on how it hap… --- ## [Life after avm treatment: restrictions and migraines](https://avmsurvivors.org/t/life-after-avm-treatment-restrictions-and-migraines/32283)
**Author:** [@Nana](https://avmsurvivors.org/u/Nana)\ **Replies:** 3\ **Last updated:** [September 11, 2026, 12:52pm UTC](https://avmsurvivors.org/t/life-after-avm-treatment-restrictions-and-migraines/32283 "2026-09-11T12:52:06Z")
Hi everyone, I hope you’re all doing well. My doctor told me that after my brain AVM was treated with embolization and radiosurgery (they decided not to surgically remove it because of its large size and the high risk i… --- ## [Question....wondering AVM vs aneurysm](https://avmsurvivors.org/t/question-wondering-avm-vs-aneurysm/32327)
**Author:** [@Allyg](https://avmsurvivors.org/u/Allyg)\ **Replies:** 3\ **Last updated:** [September 10, 2026, 9:20pm UTC](https://avmsurvivors.org/t/question-wondering-avm-vs-aneurysm/32327 "2026-09-10T21:20:31Z")
Hi all Its been awhile since posting…but I have a question. My father paswed away in February due to an aneurysm that burst that was near his heart…so he basically bled to death. He was young 69.But I was wondering if m… --- ## [What a lonely condition…](https://avmsurvivors.org/t/what-a-lonely-condition/32146)
**Author:** [@RyanC](https://avmsurvivors.org/u/RyanC)\ **Replies:** 15\ **Last updated:** [September 10, 2026, 9:13pm UTC](https://avmsurvivors.org/t/what-a-lonely-condition/32146 "2026-09-10T21:13:42Z")
Hi all, I was diagnosed with my brain AVM in October 2024. Since then, I’ve had an angiogram and been informed that due to the size and location (4cm, temporal lobe), any form of treatment would be more risky than conser… --- ## [How long for recovery after rupture](https://avmsurvivors.org/t/how-long-for-recovery-after-rupture/32298)
**Author:** [@DanJ90](https://avmsurvivors.org/u/DanJ90)\ **Replies:** 10\ **Last updated:** [September 10, 2026, 9:03pm UTC](https://avmsurvivors.org/t/how-long-for-recovery-after-rupture/32298 "2026-09-10T21:03:53Z")
Hi all, I had my rupture back on 10th December and craneoplasty 2nd May, but still suffering with a lack of sensation in my fingers and It’s just starting to get me down if I’m honest. My son was born yesterday and I’m… --- ## [Possible informed consent malpractice](https://avmsurvivors.org/t/possible-informed-consent-malpractice/32321)
**Author:** [@BAAS](https://avmsurvivors.org/u/BAAS)\ **Replies:** 9\ **Last updated:** [September 8, 2026, 4:17am UTC](https://avmsurvivors.org/t/possible-informed-consent-malpractice/32321 "2026-09-08T04:17:53Z")
I am pursuing consultations for informed-consent malpractice, but I have to post for anyone who is in a similar situation or may recognize this behavior in their own journey. My Dr. was eager to operate and downplayed th… --- ## [11 years post AVM Diagnosis](https://avmsurvivors.org/t/11-years-post-avm-diagnosis/32309)
**Author:** [@thekartikmehra](https://avmsurvivors.org/u/thekartikmehra)\ **Replies:** 3\ **Last updated:** [September 6, 2026, 9:39pm UTC](https://avmsurvivors.org/t/11-years-post-avm-diagnosis/32309 "2026-09-06T21:39:57Z")
Eleven years ago, my life changed in a way I could never have imagined. That day, I held my brain AVM report in one hand and the result of my secondary high school examination in the other. I had stood first in my school… --- ## [Left temporal AVM rupture right after conscription](https://avmsurvivors.org/t/left-temporal-avm-rupture-right-after-conscription/32315)
**Author:** [@Karizan](https://avmsurvivors.org/u/Karizan)\ **Replies:** 5\ **Last updated:** [September 2, 2026, 4:27pm UTC](https://avmsurvivors.org/t/left-temporal-avm-rupture-right-after-conscription/32315 "2026-09-02T16:27:52Z")
Hi all, This is the story of my life being put on hold as it was barely starting. I graduated college and served mandatory military service in 2023. On the first day I fell by night as they were putting us through one … [Next page](https://avmsurvivors.org/latest.md?page=1)