hi havent posted on here before so hope im doing it right :) just looking for anyone who has or is being treated for a vm in Ireland ? what doctors did you see or which hospital? ...her vm is on her tongue..is there anyone on here with same??
Maxamus, I'm not sure we have a member from Ireland with any kind of facial avm, let alone a tongue avm. However, I suggest you friend Sarah Vestergaard (http://www.avmsurvivors.org/profile/SaraVestergaard), Nikki Lulildia (http://www.avmsurvivors.org/profile/NikkiLulildia), and George (Nicole's dad) (http://www.avmsurvivors.org/profile/GeorgeChristou). When taking advice from members, remember that head and neck avms behave differently from avms elsewhere in the body.
At present, we have about 200 hundred members with head and neck avms/vms.
You may wish to contact this treatment center as well, maxamus: http://www.southtees.nhs.uk/services/plastic-surgery/vascular-birthmark-clinic/intralesional-bleomycin-injection-treatment/
Maxamus, I thought this article posted by another member might interest you: http://pulse.seattlechildrens.org/super-glue-helps-doctors-safely-remove-venous-malformations/
Though many doctors repeated the truism that these anomalies are not genetic, there are many instances on this website of multiple vascular malformations in families. Aneurysms are associated with avms and vms, though each can exist independently of the other. The chest is an unusual place for an aneurysm and might indicate an underlying condition like HHT. We have an HHT sub-group here that you can check for more information.