# AVM 20 years later formed into an aneurysm **URL:** \ **Category:** Photos\ **Created:** [June 24, 2026, 7:59pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148 "2026-06-24T19:59:10Z")\ **Posts on this page:** 8\ **Page:** 1
**Author:** ![SHERRY\_N1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/sherry_n1/32/1322_2.png) [@SHERRY\_N1](https://avmsurvivors.org/u/SHERRY_N1)\ **Post date:** [June 24, 2026, 7:59pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/1 "2026-06-24T19:59:10Z")
Hi. I have been this group I’ve been together with this group for over 21 years. I first found out that I had AVM May 2005 severe headaches I’m constant going to the emergency room and finding out that I have AVM my stories there somewhere within all the archives of things and here lately I found out on actually in 2020 I went and had a cerebral angiogram done and the doctor said that I was forming a clot at that time he says no big deal we’ll keep up on it. It was probably about the size of a needle and then he went and did another cerebral angiogram in 2025 May and now it is come to a much bigger needle to where I have to go in and have it operated on. This appears to be on my left side by my AVM and it’s gone into the aneurysm like I said they have to do a bypass to where they take a vein out from somewhere and put it into the other veins so we could get a clear flow so this is what can happen even 20 years later I thought I was cleared and come to find out I’m not. ---
**Author:** ![JD12](https://avatars.discourse-cdn.com/v4/letter/j/ad7895/32.png) [@JD12](https://avmsurvivors.org/u/JD12)\ **Post date:** [June 25, 2026, 11:17am UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/2 "2026-06-25T11:17:27Z")
Welcome back! Its been a while and I wish it was under better circumstances for sure. I imagine there has been some changes here in 21 years for sure, I’ve been here for 10. Where are you having the procedure done? I can imagine the disappointment and frustration after this long, but I imagine it is a bit of a relief they are able to do the surgery. Take Care, John. ---
**Author:** ![SHERRY\_N1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/sherry_n1/32/1322_2.png) [@SHERRY\_N1](https://avmsurvivors.org/u/SHERRY_N1)\ **Post date:** [June 25, 2026, 12:25pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/3 "2026-06-25T12:25:41Z")
Thank you John … it has been a disappointment I have avoided surgery all these years and know have to have it. I am going to UPMC in Pittsburgh PA.. they have treated me well so far, even for other procedures. Good luck and have a blessed life. ---
**Author:** ![Timb](https://avatars.discourse-cdn.com/v4/letter/t/3e96dc/32.png) [@Timb](https://avmsurvivors.org/u/Timb)\ **Post date:** [June 28, 2026, 12:52pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/4 "2026-06-28T12:52:54Z")
Wow, that sucks. Fighting an avm once is hard enough but to have to go again? What options are they giving you versus what you want. As I had already bled, my only option really was surgery, which was over 30 years ago. Tim ---
**Author:** ![SHERRY\_N1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/sherry_n1/32/1322_2.png) [@SHERRY\_N1](https://avmsurvivors.org/u/SHERRY_N1)\ **Post date:** [June 28, 2026, 6:14pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/5 "2026-06-28T18:14:00Z")
Well Mr Tim: I have no other options. Surgery is it. I have done radiation, and Dr Lang from UMPC Pittsburgh PA says it was probably the radiation that caused my aneurysm. I had over 35 shot of it. I had a bad AVM. ---
**Author:** ![Timb](https://avatars.discourse-cdn.com/v4/letter/t/3e96dc/32.png) [@Timb](https://avmsurvivors.org/u/Timb)\ **Post date:** [June 30, 2026, 4:59pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/6 "2026-06-30T16:59:30Z")
Hello Sherry Right so things to think about with surgery. Ask them where they are going to cut your head, pain management, size of scar. Like I said, I could only have surgery and I still feel the scar is tender 30+ years later. What can they do to help with the scar? I suggest getting a headshave so that after the op all your hair grows back together. The 1st Haircut after surgery was painful even by a careful trusted hairdresser. Get ready for mega head pain as the drugs wear off. The slightest movement of my head on the pillow felt like I was going to have the worst migraine or blow my stitches apart. It’s necessary but wow did it hurt. Get visitors to only make short visits as I couldn’t manage any conversations. When is the op planned? I hope it doesn’t scare you but I wish someone could have told me about Possible side effects. ---
**Author:** ![SHERRY\_N1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/sherry_n1/32/1322_2.png) [@SHERRY\_N1](https://avmsurvivors.org/u/SHERRY_N1)\ **Post date:** [June 30, 2026, 6:19pm UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/7 "2026-06-30T18:19:50Z")
Hi Tim The surgery is August 10th. The scar will be on my left side from forehead to front of ear down to my jaw..I realize that I will be be put into a be of those head devices..than Dr says I should should be in for about 2-3 days and than get to go home. Pain management.. he said I would have the best possible care. Should I really cut my hair… nusre Julia said he would probably braid my hair and should have enough to cover up my scar. But it hurts .. I’m a chicken when it comes to pain. But I can stand alot thank for talking to me..nice to know you care., ---
**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\ **Post date:** [August 8, 2026, 9:28am UTC](https://avmsurvivors.org/t/avm-20-years-later-formed-into-an-aneurysm/32148/8 "2026-08-08T09:28:56Z")
@SHERRY_N1 I’ve remembered that you’re in on Monday, so I just wanted to say, “Have a good week.” We’ll be thinking about you all week. Lots of love, Richard