Best doctor in the US for extremity AVMs/multiple AVMs

[DickD]

This is the main article we have about these sort of complications

Why arm and leg AVMers should know about Klippel-Trenaunay and Parkes-Weber Syndrome

In my evolving understanding of leg and arm avms, I am learning that embolizations and sclerotherapy may do more harm than good if you have Klippel-Trenaunay or Parkes-Weber Syndrome. To complicate matters, doctors use different definitions of what constitutes KTS or PWS. Some doctors say if there is no portwine stain, it cannot be KTS or PWS -- not true. Other doctors say if there is no overgrowth of the limb (hypertrophy), it is not KTS or PWS -- this is a newer, narrower notion of these condi…

Madere doesn’t hang around here these days but she’s left a useful trail of knowledge.