Bleed from AVM/Craniotomy/Seizures

Hello all,
Does anyone know what exactly happens to the “blood” from an AVM when it bursts?
My husbands burst before he had his craniotomy 8 months ago. He has done very well from the surgery but now suffers with Grand Mal Seizures. In talking with a General Practitioner he said the seizures could be coming from the scar tissue or the bleed itself. He said it takes several years for that blood to be absorbed. Has anyone else heard this? What have you heard regarding why you have seizures after a craniotomy?
Thanks for all info! Have a great day!

There is always a risk of seizures after any brain trauma. I have a severe bleed from 4 aneurisms that ruptured in my large AVM and I had to be on anti seizure meds for over a year as a precaution. To help pull the blood off of my brain at that time, they did a spinal tap every day for 5 days and this caused the blood to settle in my hips. I could not hardly walk for weeks. Blood that leaks into you system no matter where it is can be very hard on your body and does take quite a while to reabsorb. I know that even months after my rupture the cat scans still showed blood on my brain. They thought I was rupturing again and did several cat scans over the next six months and each one still showed blood but it was from the initial ruptures, not new blood. The scar tissue from the surgery or the blood can cause brain damage once it forms, the Dr’s told me that from my radiosurgery that brain damage could show up to ten years but after that I should know for sure how I was going to be from all of this as long as no new ruptures occured.
I know how scarey and hard this all can be. I am 11 years post surgery now and my AVM is now growing back. I am glad that you found this site and we are all here to help each other. Without the understanding and knowledge we all have to share with each other, it would make this much harder.
Keep your chin up and know that we are here for you.

As odd as it may seem, blood, when it does somewhere in the body that it is not supposed to go, can be toxic. This is especially true in places like the brain and lungs. When I had my craniotomy, the neurosurgeon not only removed the AVM, but also a significant section of brain tissue that had died as a result of direct contact with none-circulating blood, plus the lack of proper oxygen exchange in the capillaries. Like others, I am also on anti-seizure meds due to the trouble caused from the physical trauma. I had a Grand Mal seizure a few months after being removed from my anti-seizure meds.

My headache specialist thinks that the headache I have had for over 2 and half years, is because of the blood left from my 2 brain hemorrhages. They say that it should eventually absorb. But In the mean time I’m in constant pain from these headaches and with the 3 or so seizures I have in a week. Like others they think my seizures are from scar tissue and also because my avm was in the area of the brain that can cause most people to have seizures. I am now on Disability…and expecting a baby. I’m TERRIFIED! I know having a baby is a GREAT thing and i am looking forward to it…just hoping I can actually be a good parent.

Thanks so much Susan, hearing eveyone’s experiences and what they have learned throughout this process is a big help!

Susan T. said:

There is always a risk of seizures after any brain trauma. I have a severe bleed from 4 aneurisms that ruptured in my large AVM and I had to be on anti seizure meds for over a year as a precaution. To help pull the blood off of my brain at that time, they did a spinal tap every day for 5 days and this caused the blood to settle in my hips. I could not hardly walk for weeks. Blood that leaks into you system no matter where it is can be very hard on your body and does take quite a while to reabsorb. I know that even months after my rupture the cat scans still showed blood on my brain. They thought I was rupturing again and did several cat scans over the next six months and each one still showed blood but it was from the initial ruptures, not new blood. The scar tissue from the surgery or the blood can cause brain damage once it forms, the Dr’s told me that from my radiosurgery that brain damage could show up to ten years but after that I should know for sure how I was going to be from all of this as long as no new ruptures occured.
I know how scarey and hard this all can be. I am 11 years post surgery now and my AVM is now growing back. I am glad that you found this site and we are all here to help each other. Without the understanding and knowledge we all have to share with each other, it would make this much harder.
Keep your chin up and know that we are here for you.