On Friday I learned that my avm is not on "the left side of my brain" as the neurologist said, but actually near the left side of my brainstem and they also see a couple large arteries to the right. So now I'm waiting for an appointment for an angiogram and then they will recommend treatment options. I'd really like to hear from folks about their experiences with brainstem avm pre and post treatment.
Saw that no one replied to your post. Sorry, it happens sometimes..........
Go to the box at the upper right of this page and type in 'brainstem avm' (without the '). You'll get directed to a slug of posts that talk about brainstem AVMs--more than you'll have time to read probably.
If you see something you'd like to respond to, you can post a reply to a post, or go to the wall of the person who wrote it and post a comment for them.