For about 36 hours now I’ve had a weird stinging/sharp pain in my head near one of my spots. I learned I have cavernous malformations from my pcp as she read me the report. Neuro doc didn’t specify (nor did i ask as i didnt know there were different kinds) when she called me with the MRI results back in February.
Anyway, I have this pain. My hubby says to call the neuro doc. I’m hesitant as its not like a headache, just a pain. You all have more experience then I do with this. What would you do?
What are doing up this early? Yea.. I'm up too. LOl
I get them quite regularly but, they only last a day or less. On the pain scale they are only about a 3 to a 5 for me and they are on the surface of my head, not deep in. Since it's been 1 1/2 days for you, I agree with your husband. I would call the dr and ask him. I don't think it's an indication of anything serious but,... You know the old saying; Better to be safe than sorry (wink).
It's possible it's nothing. I would call the dr. to make sure though. The nurse or his assistant could probably answer your question.
Lol. I’m quite the insomniac but tonight is actually because of my daughter. Poor baby is only sleeping a few hours at a time and we can’t figure out why. She was sleeping through the night like a champ. Then it all went down hill a couple of weeks ago for no apparent reason.
Ugh. You’re prob right. I just hate calling. I feel like a pest. And… I’m stubborn, in case you couldn’t tell.
Thanks! I’ll call if it isn’t gone by the afternoon.
Your baby is just going through a phase. I went through it with my goddaughter, whom I help raise. Her's lasted about a month. If I remember it right. I think they get growing pains (?) The only thing that helped was to make sure she had a full belly before she went to sleep. It didn't always work but, it did sometimes.
Hi Erin, When having new symptoms, it's best to play it safe & consult your dr.
Since your neurologist did not inform you of your specific diagnosis, I would encourage you consider finding another neuro &/or get a 2nd opinion w/ an expert neurosurgeon who routinely manages & treats CMs. Getting opinions from experts will allow you to choose the direction of care that is right for you.
You might want to review this discussion @ http://www.avmsurvivors.org/forum/topics/top-neurosurgeon-in-the-us?xg_source=activity.
I hope this pain turns out to be 'nothing. :)
Best wishes.
Hi Erin My motto "if you are in doubt with anything, call for an Ambulance and get checked out" It's far better to be safe than sorry.
I would have not known about my AVM if I just waited to "see someone" I called for the emergency services get admitted and they discovered I had this AVM.
It hasn't bleed but it could have and the situation would have been much much worse.
Hi I get pains in my head as well its weird all the different symptoms I'm having that my doctor says are not associated with this but how do they know if they have never had it themselves. I am awaiting my surgery.
Mine sometimes has a weird sharp "hair pulling" sensation specifically over the dural fistula from time to time (especially when blood flow is really pumping, or after exercise/caffeine). Prior to my embolizations and sometimes after I feel like I'd been hit in the dural fistula area with a hammer. Hard but not excruciating. I'd call the doc just to check in and be sure and clarify with him/her exactly what it feels like.. and since it seems like you didn't get an exact diagnosis please get a second opinion with a neurosurgeon/interventional neuroradiologist.
