Patti
December 4, 2012, 12:21am
1
For those of us also enduring Central Pain Syndrome, to help raise CPS awareness, I submitted a pic along w/a brief description of this pain monster to Rare Disease Day 2013 @ http://www.flickr.com/photos/rarediseaseday/8231988159/in/photostream .
Quoting recent Nat'l Institute Neurological Disorders & Stroke literature, I am one of 100,000 in America affected by CPS...
Because of CPS, walking is excruciatingly painful & limiting, so when in public for extended outings, I use a manual wheelchair or mobility scooter.
Patti
Julie3
December 4, 2012, 5:24pm
2
Nice job on the videos, Patti. I’m a big fan of video awareness, and I feel much more knowledgable on CPS.
Patti
December 5, 2012, 3:46pm
3
Thanks, jules. :) This was a photo entry for Rare Disease Day 2013 & entries are allowed a brief description of their rare disease. Another opportunity to raise awareness! :)
Julie3
December 5, 2012, 5:10pm
4
Without clicking on your link, I assumed (and you know what they say about assuming ) that it was the video:
http://www.avmsurvivors.org/video/central-pain-syndrome-lifestyle-changes .