Cerebellum avm

I just saw this. Hope all is going well for you!

I had cyberknife for a cerebellar AVM about 8 years ago. The nidus bled, which was the first indication I had the AVM. First I had embolization surgery, and then the cyberknife was supposed to take care of the remainder. Unfortunately, it didn’t, so the AVM recruited new vessels and regrew. I knew that was possible, but at the time I didn’t really want to travel to have open surgery (there wasn’t anyone appropriate in where I lived). I had to have embolization done again a few months ago (I went to Cleveland Clinic), in order to remove as much risk as possible from the open heart surgery I was desparately needing. The surgeon took more radiation out of consideration, because that part of my brain had already been the field for theraputic radiation when I had cancer nearly forty years ago.

So anyway, the CyberKnife was pretty easy. No frames, too, just a custom mask. I had a lot of issues after the embolization with balance and fine motor control, but not after the Cyberknife. Everyone’s experience is different, though.

I hope you are doing well and that this works for you. Be sure to have follow-up over the years to see what its status is. as it does take a long time to scar shut. The pandemic delayed mine unfortunately, and then it was a very complicated situation due to other medical issues.

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Thank you for you response!
I’m sorry you had to go through this.Is it gone now?How are your motor skills?
I had cyberknife 3 days ago and all went smooth.
I’m on steroids now for 20 days and then I’ll have the usual check up MRI in 6 months.
I’m ok for now just feeling my head a little stiff i would say.

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