DAVF. It’s growing and I’m really scared

I had a large DAVF (one of the biggest my doctors has ever seen) near my left carotid artery. My DSVF was repaired with a combination of 40 coils + 5 stents, and then 1 wall stent in the left internal carotid artery. Total operating time was 6 hours. I spent 1 day in ICU and a half day in a regular hospital room. Overhaul though it took a total of 2 procedures to fix the DAVF, the 2nd procedure was about 2 hours. The reason why my surgeon did it in 2 procedures is because he didn’t want to be too aggressive and cause more damage than good. So we took baby steps, knowing very well that it could have even been 3 procedures.

Feel free to read my journey here:

I am located in the USA and went to Mount Sinai in New York.

How many surgeons have you gone to for an opinion on your current health situation? I went to multiple surgeons until I find the best of the best. From what I know, DAVFs are very rare and you should make sure your surgeon is very qualified in this area.

Let me know if you have any questions. Wishing you the best!
Aivilo

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