# Events near NJ

**URL:** <https://avmsurvivors.org/t/events-near-nj/22923>\
**Category:** Northeast AVM Survivors\
**Created:** [September 28, 2019, 9:20am UTC](https://avmsurvivors.org/t/events-near-nj/22923 "2019-09-28T09:20:22Z")\
**Posts on this page:** 12\
**Page:** 1

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**Author:** ![Andrew\_C](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/andrew_c/32/6867_2.png) [@Andrew\_C](https://avmsurvivors.org/u/Andrew_C)\
**Post date:** [September 28, 2019, 9:20am UTC](https://avmsurvivors.org/t/events-near-nj/22923/1 "2019-09-28T09:20:22Z")

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Hey guys do we have any events near New Jersey i would like to support and do something to help the cause and maybe share stories and experiences with people

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**Author:** ![Grace\_O\_B](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/grace_o_b/32/15163_2.png) [@Grace\_O\_B](https://avmsurvivors.org/u/Grace_O_B)\
**Post date:** [September 30, 2019, 2:06am UTC](https://avmsurvivors.org/t/events-near-nj/22923/2 "2019-09-30T02:06:08Z")

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I do not know of any…I will call my doctor’s office and find out if he knows of any… will let you know if so.

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**Author:** ![Andrew\_C](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/andrew_c/32/6867_2.png) [@Andrew\_C](https://avmsurvivors.org/u/Andrew_C)\
**Post date:** [October 1, 2019, 7:52am UTC](https://avmsurvivors.org/t/events-near-nj/22923/3 "2019-10-01T07:52:13Z")

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Thank you appreciate that 🙂

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**Author:** ![karen\_s](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/karen_s/32/2124_2.png) [@karen\_s](https://avmsurvivors.org/u/karen_s)\
**Post date:** [October 1, 2019, 12:50pm UTC](https://avmsurvivors.org/t/events-near-nj/22923/4 "2019-10-01T12:50:27Z")

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i know there is an avm support group in lawrenceville, but i don’t know the details since it is too far for me. i think it’s at st. lawrence rehab. in north jersey. are you north or south?

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**Author:** ![Andrew\_C](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/andrew_c/32/6867_2.png) [@Andrew\_C](https://avmsurvivors.org/u/Andrew_C)\
**Post date:** [October 2, 2019, 4:40am UTC](https://avmsurvivors.org/t/events-near-nj/22923/5 "2019-10-02T04:40:36Z")

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I am in north jersey North Arlington but place is still an hour away but i would def like to make a trip once or twice a month

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**Author:** ![AVMsurvivor](https://avatars.discourse-cdn.com/v4/letter/a/8797f3/32.png) [@AVMsurvivor](https://avmsurvivors.org/u/AVMsurvivor)\
**Post date:** [October 4, 2019, 1:41am UTC](https://avmsurvivors.org/t/events-near-nj/22923/6 "2019-10-04T01:41:19Z")

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[brain-aneurysm-rwj-2018.pdf](https://avmsurvivors.org/uploads/short-url/9H6gqTAbotybigNm8oMghJ9gpDG.pdf) (127.8 KB)

Hi Andrew,

RWJH in New Brunswick has quarterly meeting where patients/physicians/HCPs meet to talk about AVM. Give it a try. I hope you find it helpful and informative.

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**Author:** ![AVMsurvivor](https://avatars.discourse-cdn.com/v4/letter/a/8797f3/32.png) [@AVMsurvivor](https://avmsurvivors.org/u/AVMsurvivor)\
**Post date:** [October 4, 2019, 3:05am UTC](https://avmsurvivors.org/t/events-near-nj/22923/7 "2019-10-04T03:05:19Z")

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Here is additional information:  
[https://bafound.org/support-group/new-jersey-brain-aneurysm-and-avm-support-group/](https://bafound.org/support-group/new-jersey-brain-aneurysm-and-avm-support-group/)[2019-RWJ-Brain-Aneurysm-SG-Info-Flyer.pdf](https://avmsurvivors.org/uploads/short-url/kBxAolyMMwzMUOrtGsRpbd7QceY.pdf) (294.4 KB)

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**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\
**Post date:** [October 4, 2019, 5:24pm UTC](https://avmsurvivors.org/t/events-near-nj/22923/8 "2019-10-04T17:24:45Z")

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This is all great info, so I’ve moved it to the North East AVM Survivor regional group. If you think it would be better elsewhere, let me know.

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**Author:** ![Grace\_O\_B](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/grace_o_b/32/15163_2.png) [@Grace\_O\_B](https://avmsurvivors.org/u/Grace_O_B)\
**Post date:** [October 4, 2019, 11:17pm UTC](https://avmsurvivors.org/t/events-near-nj/22923/9 "2019-10-04T23:17:00Z")

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I found the New Brunswick one as well… [https://bafound.org/support-group/new-jersey-brain-aneurysm-and-avm-support-group/](https://bafound.org/support-group/new-jersey-brain-aneurysm-and-avm-support-group/)

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**Author:** ![bschneids55](https://avatars.discourse-cdn.com/v4/letter/b/da6949/32.png) [@bschneids55](https://avmsurvivors.org/u/bschneids55)\
**Post date:** [February 18, 2022, 5:38pm UTC](https://avmsurvivors.org/t/events-near-nj/22923/10 "2022-02-18T17:38:57Z")

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Hi, my name is Brandon and I live in NYC. I would love to get together with any fellow AVM’ers as I don’t have any friends who also have AVM. Oh really know any others for that matter. I am willing to take a field trip within a reasonable distance to New Jersey to meet up or if you are interested in coming to New York that would be awesome.

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**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\
**Post date:** [February 18, 2022, 6:15pm UTC](https://avmsurvivors.org/t/events-near-nj/22923/11 "2022-02-18T18:15:35Z")

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Brandon,

Welcome to AVMsurvivors! It’s great you found us and I hope you’re doing ok.

We do sometimes have regional get togethers (@corrine has organised a few in the UK in recent years) and it is good to be able to meet _real people_ as well as chat on here. I hope you get a bunch of New Yorkers and others that you might all get together.

I’ve removed your email address from your post because this place is searched by Google, Bing and all of the other search engines and so it would give the whole world access to your inbox. What I suggest is that you gather willing AVMers in this thread and then move to a private message to coordinate being able to meet up without similarly being liable to outsiders interrupting, disrupting etc.

Best wishes,

Richard

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**Author:** ![JohnPANY](https://avatars.discourse-cdn.com/v4/letter/j/c77e96/32.png) [@JohnPANY](https://avmsurvivors.org/u/JohnPANY)\
**Post date:** [June 9, 2025, 6:25am UTC](https://avmsurvivors.org/t/events-near-nj/22923/12 "2025-06-09T06:25:12Z")

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For those unable to travel and still in the NY/NJ/PA area looking to connect on a regular online session with both medical professionals and other patients, there is a monthly sometimes quarterly online group ran by St. Luke’s Hospital.  
Free to attend, interactions are optional and at the discretion of any attendee. Guest speakers join from time to time to give talks about how AVM research is going, and to open a Q&A.

_Group meets the third Tuesday of the month from 4-5 PM. Register through the Event Calendar at [www.sluhn.org](https://www.slhn.org/) or call 1-866-STLUKES (785-8537), option 4._
