For those with gait (walking) deficits or deficits in general

I have seen this come up a few times in other discussions, so I wanted to post it separately.

If you have any walking or arm deficits (or deficits in general), I would encourage you to try to work to have those resolved as early as you can. I understand it's difficult to consider your poor walking when you are trying to get your brain unscrambled from an AVM, or surgery, or both. For several reasons, Doctors who fix AVMs consider the treatment successful when the AVM is 'gone'. To Drs, you are alive, so a few deficits to them are mostly insignificant, and that's not such a bad way to think of it as well.

For us, Chari had right leg nerve damage and foot drop following an embo. The short term fix was wearing a leg appliance (brace). It was not comfortable, but kept her from tripping over her drop foot.

After wearing it for 10+ years, her walk had become abnormal enough that it was causing her lower back pain. Ankle/foot surgery to correct the foot drop allowed her to walk without a brace (this was only a 50-50 chance according to her foot surgeon).

But after walking incorrectly for so long, muscle atrophy, and nerve damage still affects her walk.

So........................ what I recommend if you have these issues following AVM treatment, go to physical therapy as long as you can to rebuild your body. In the US, as soon as you plateau, insurance stops paying (duh).

We were very fortunate that we knew a tremendous personal trainer. Susie told us that if she knew what muscles did not work, she could work to strengthen the working muscles in the area to help make the walk more normal. We got Susie access to Chari's PT records, which told her which muscles did and did not work. With that, Susi was able to create exercises that would build up the working muscles.

Additionally, Chari tried out and purchased a device called a "walk aid" that stimulates the leg muscles based when she walks. For her, it really helps. Note that it is not cheap, about $5,000, is most likely not covered by insurance, and it requires batteries and pads for your skin. But it helps her walk much better.

Hope this helps. Feel free to comment or post questions. I will try to answer, but remember, I am only a layperson as well.

Ron, KS

Hi Ron & thanks for posting this.
I'm glad Chari has found something that helps her! :) & assume this is the Walk Aide you mentioned @ http://www.youtube.com/watch?v=-I3L-b1pm2I & http://www.youtube.com/user/WalkAide?
Best wishes.

Thanks Ron and Patti for the link.

Her's doesn't look just like these, but the idea is the same. I'll take a pic of her's soon and post it.

Ron, KS

Hi Ron - FYI, I called http://www.walkaide.com/en-US/Patients/Pages/default.aspx to ask about Medicare covering the $4500 cost; they said that they do only if it's an incomplete spinal chord injury - double-edged sword =); however, most of their providers/suppliers offer a discount for purchasing the device.

Thanks for the info.