Gamma knife 2

Hi @matty

It’s great to hear from you, though not so good that you feel the need to log in and find help.

I know that for some people, there are prism glasses that can accommodate / reduce or remove some visual things. I don’t understand whether that is what you would need or whether something different is relevant. Have you talked to your GP about the various issues or to the neuro at all? Sometimes sight things start with one’s optician rather than the GP. I know I had a suspected lift in part of my retina or possible macular degeneration and I can’t remember whether the optician referred me directly to hospital or whether I had to then talk to my GP to get referred to hospital. So talk to the GP and your optician, I guess and see what they say.

With regard to worries about work, what do you do for work? I had to stop driving for several months in anticipation of my operation and so I went to and from my office job by bus or through lifts with colleagues who were most helpful. I have always chosen to live on a bus route to work in case my car broke down: in the event of my AVM diagnosis, it was effectively me that had broken down, but being on a bus route sorted me out to carry on going. Obviously for some lines of work, not being able to drive is a complete obstacle: what do you do?

Lots of love,

Richard

HI DICKD

Several years on and the wisdom man is still here.

Gllasses sound good. if i lok right in front as if looking at a clock face. I see nearly nothing between 12 and 3… i need to see a gp like you say asap.

I live 20 mile from work. Its to hard to get theeere. If i lose my license .

I am going to look closeeeer to home.

iam gonna glasses. Thanks

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It’s always good to have options re work. If you can move closer, that might be a good thing.

The other thing worth noting is that if you become unable to do your current role wherever you work, the Disability Discrimination Act 1995, now replaced by the Equality Act 2010 obliges your employer to consider whether there is other work they have that you could reasonably do. The Act doesn’t oblige them to invent a role for you but if there is work that needs doing and you could reasonably do it with perhaps some adjustments, then they would be obliged to offer such things to you rather than just ditch you. If you’re in a trade union, talk to the trade union about your situation. If you’re not in a trade union, perhaps talk to Citizens Advice just to make sure you know what you’re rights are.

Do stay in touch!

Richard

I am an Orientation and Mobility Specialist for the blind and visually impaired. I work with people that are losing or have lost their vision and their ability to travel safely. You mentioned you are running into people so maybe it’s time for you to reach out to your government organization that helps the visually impaired population. You might need a cane not for support but for guide. Your depth perception might by compromised to detect step ups and step downs because of your eye situation. Running into people can be prevented. Search for help in the UK. If no one helps you at least then buy a cane yourself via www.ambutech.com. Roberto Huerta, Certified Orientation and Mobility Specialist

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A post was split to a new topic: Spinal DAVF

Hi

Thanks. I have just made contact with a vision place near where I live. They are going to give me a chat in the new year. And I am avig a look at te disagreement 1995. Greate help. Thanks

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Hi Dageris

This will be good info. Also nice to see people being well to help.

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I’d say the key UK organisation is the RNIB

I can’t see an “about” section on their website but RNIB is Royal National Institute for the Blind and obviously they help people with all stages of sight loss.

Cheers

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