Glasses... PLEASE help!

It appears that I am headed in the direction of wearing prism glasses for my double vision; therefore, I have two questions concerning glasses:

(1) Does anyone have any information (whether first-hand experience or not) about prism glasses for double vision? (I've read some people have experienced dizziness & nausea with the prism glasses, while others do not. Additionally, my neurosurgeon stated on 2-1-11 that the reason doctors wait 12 - 18 months before trying prisms is to make sure that the vision issue is a 'fixed deficit' because IF the double vision was not a 'fixed deficit' that the prisms will eventually stop working (to correct the double vision). Any tips on how to walk in them? Can your eyesight 'heal' and not become 'dependent' on using the prisms? etc....?

(2) I've never worn glasses before - I wore contacts for near-sightedness - and have no clue how to get use to just viewing things through the lenses of (regular) glasses, let alone glasses with prisms. ANY tips on the 'use'/wearing (for regular glasses or prism glasses) would be greatly appreciated!

Thank you all, in advance, for any tips or suggestions! I GREATLY appreciate it!!!

Hi Cindy,

I started wearing glasses about 3 years ago however my eyesight has been slowly deteriorating since my early 20's. I knew once I put them on I would not be able to take them off so I dealt with it for 20 something years. I gave in and purchased my first set of glasses when I was on a vacation in Thailand because I wanted to see in detail my surroundings and what a difference it made. However since giving in every thing is a complete blur when I take them off. If you can live with your vision the way it is I would delay glasses for as long as you can. As for your case, I'm sorry I can not give an opinion on Prism or double vision as that is not something I have experienced.. Hope that helps.

Thank you, Brett. Any tips on how to get use to viewing things/walking in glasses that helped you to adjust?

After Chari's surgery to fix an aneurysm, the surgeon said that just being in the area of the optic nerve sometimes lead to double vision. He said it would be "temporary". After 3 months, she was beginning to doubt temporary.......... But one morning, she woke up and it was gone--both eyes worked together.

When she came out of surgery, I was in ICU. First time she opened her eyes, both focused on me. She blinked, and one eye was straight and the other was canted in about 30 degrees. STRANGE.

Their solution was low tech. Wear an eyepatch and alternate days so each eye still works. What made her's so aweful was the double image was stacked one on top of the other, so she never knew what she was looking at and which was the real image (unless she had the eye patch on).

Hope this helps.

Ron, KS

Thank you, Ron. So glad Chari’s cleared up on its own. (I’ve tried the patch & medical taped non-perscription glasses, as well as eye nutrition & supplements and eye exercises, & my double vision is still ocurring. I’ve researched ‘nerve palsies’, in attempts to find a way to correct any ‘palsies’ (which, according to the optmetrist AND the neuro-opthalmologist that I was evaluated by, I don’t have any ‘nerve palsies’) but have been unsuccessful in finding any way to remedy any ‘palsies’ (which can result in double vision). In all honesty, the patch made my double vision problem more ‘problematic’ when I don’t wear the patch. (When I wear the patch or the taped non-perscription glasses that blocks out the vision from one eye (so one is only using one eye to see things), I do not have double vision.) My double vision seems to be ‘weird’, as the ‘double/distorted/blurred’ image is slanted & above when I look towards the left & across my nose and slanted & below when I look across my nose & towards the right. (It use to be that I had it pin-pointed down to when I just looked across my nose to the left that it was more ‘noticeable’… but it changed.) The neuro-opthalmologist stated prisms or eye muscle surgery to correct it now but I was referred to a Double Vision Specialist (whom I go see on 2/24/11) for prisms. (Not estatic about either ‘choice’; however, through my research I learned that eye muscle surgery really isn’t a good/viable solution for the RESOLUTION of double vision (it is good for ‘cosmetic purposes’ though - which, thank God, I don’t need). I’ve had ‘bouts’ of nausea & dizziness already (no doubt, due to the ‘visual issue’) and read that wearing prism glasses can (but not always) also make a person experience those 2 also. I have ABSOLUTELY no - none, zip, zilch - experience in wearing perscription glasses (of any kind); therefore, I know I will need some ‘instructions’ on the ‘procedure’ of how to walk/see in them.)

Ron, KS said:

After Chari's surgery to fix an aneurysm, the surgeon said that just being in the area of the optic nerve sometimes lead to double vision. He said it would be "temporary". After 3 months, she was beginning to doubt temporary.......... But one morning, she woke up and it was gone--both eyes worked together.

When she came out of surgery, I was in ICU. First time she opened her eyes, both focused on me. She blinked, and one eye was straight and the other was canted in about 30 degrees. STRANGE.

Their solution was low tech. Wear an eyepatch and alternate days so each eye still works. What made her's so aweful was the double image was stacked one on top of the other, so she never knew what she was looking at and which was the real image (unless she had the eye patch on).

Hope this helps.

Ron, KS

Cindy,...

I have no experience with either "prism" or double vision, however,...I am an ol' pro with bi-focals. (I have trouble reading things very close to my eyes)

When you are wearing your "prism" corrective lenses,...BE CAREFUL OF STAIRS, going both UP and DOWN.

I had one hell of a time regulating my head position to see through, or above the bi-focal line in my glasses in order to bring the stair steps into focus.

I would think that while on relative "flat" terrain, you should be fine.....:-)

Thank you, William.

William said:

Cindy,...

I have no experience with either "prism" or double vision, however,...I am an ol' pro with bi-focals. (I have trouble reading things very close to my eyes)

When you are wearing your "prism" corrective lenses,...BE CAREFUL OF STAIRS, going both UP and DOWN.

I had one hell of a time regulating my head position to see through, or above the bi-focal line in my glasses in order to bring the stair steps into focus.

I would think that while on relative "flat" terrain, you should be fine.....:-)

Hi Cindy. My first glasses ever had progressive lenses in them . I put them on and thought YIKES. How could I possibly see out of these things? I forced myself to wear them all that afternoon and night. By the next day…it was easy.

Thank you, Barbara.

Barbara H. said:

Hi Cindy. My first glasses ever had progressive lenses in them . I put them on and thought YIKES. How could I possibly see out of these things? I forced myself to wear them all that afternoon and night. By the next day...it was easy.

Hi Cindy,

After an eye exam back in my teens the doc asked me to stand up and walk around the room with those large frames they use. The floor was up around my waist, it was so horrible I decided I will live mildly blurry vision for as long as possible. When I gave in a few year ago and purchase my first set of glasses it was the same way and as William said yes the stairs walking out of the mall was my first obstacle and I thought I was going to trip. I had to hold the rail all the down like an old drunk leaving the bar. Like Barbara said by the second day I was 100% used to it. Piece of cake, just don't go planing any tight rope walking for a few days :-) you will be fine.

Cindy Phillips said:

Thank you, Brett. Any tips on how to get use to viewing things/walking in glasses that helped you to adjust?

Hi Cindy. Don't be afraid of trying glasses or prisms. Double vision alone could cause dizzziness and nausea. The prism should definately help,when the Dr is ready to try that route. If you only need a little bit of prism, you should tolerate it very well, as most people do.

I recently got a new pair of glasses, and just seeing the edge of the frame was giving me a headache after about 2 hours. So, I put my old ones on for a while. After a couple times of switching them, I was able to wear the new ones with no probs. Your brain is able to "ignore" the image of the frame. As much trouble as my brain has given me over the years, it came through with adjusting to the glasses!

Maybe try a pair of glasses w/o prisms just to get used to walking around in them first. Then the prisms will be less of an adjustment.

Good luck!

Kristin

Thank you, Kristin.

Update (Just keeps changing...):

Bumbed at the moment & trying to soothe & convince myself on the vision issue.

Prism option is no longer a viable option. Eye muscle surgery (on both eyes) to split & reposition the muscle (that is one of the 2 top muscles on the eye that the 4th nerve (AKA: Trochlear Nerve) 'controls') is the reccommended treatment (... currently). According to today's exam (coupled with the neuro-opthalmologist's exams on 1/18/11 & my brain surgery info.), it appears to the Double Vision Specialist that I have a 4th Nerve palsy that involves a 'torsion' disturbance/issue. I'm definitely not keen on the idea of surgery on my eyes but it MAY resolve it (a 50/50 chance of correction through surgery) & apparently, that's the only real option to correct the double vision. No immediate relief for the double vision nor the dizziness & nausea that accompanies the visual disturbance. My eye muscle surgery has been scheduled for 3/14/11, which gives me approx. 2 weeks to completely decide. Any suggestions or tips? (I read a few weeks ago - don't remember from what post it was commented on - about a mother whom's daughter just had eye muscle surgery. Anyone know?)

Hope everyone is doing well!!!

Hi Cindy, Heres a tip for finding the posts you are looking for. Go to Google.com and type in the keywords including the brackets like this “avmsurvivors.org” “eye muscle” you will find all posts with only those keywords in it provided Google has indexed them or the posts are not set as private. Hope that helps speed up your research :slight_smile: I think it maybe Tina you are looking for.

Thank you, Brett.

Brett D said:

Hi Cindy, Heres a tip for finding the posts you are looking for. Go to Google.com and type in the keywords including the brackets like this "avmsurvivors.org" "eye muscle" you will find all posts with only those keywords in it provided Google has indexed them or the posts are not set as private. Hope that helps speed up your research :) I think it maybe Tina you are looking for.

Cindy

I dont know if you want surgury or not, but, I had 3 surguries on each eye and it helpped my vision alot. After the AVM it was 20-200. Now its almost perfect. The surguries consisted of tightening of the little muscles conecting the eyeball to the brain.

Dean

Thank you, wojo. I had eye muscle surgery on 3/14/11 to split & reposition the Superior Oblique eye muscle on both eyes and that helped (but not completely, as I still have some double vision in areas). You had 3 surgeries… for which eye muscles?

wojohowitz said:

Cindy

I dont know if you want surgury or not, but, I had 3 surguries on each eye and it helpped my vision alot. After the AVM it was 20-200. Now its almost perfect. The surguries consisted of tightening of the little muscles conecting the eyeball to the brain.

Dean