Has any one had problems after gamma knife tretment for an avm

Im interestest to know if anyone else has had side effects from gamma knife , i had treament about 2yrs ago, after 3mths i started to lose my hair vomit, and head pains and felt there were changes in my thinking style, personality , and memory this may be unrelated to the gk and avm , but be interested if any others have had similar things happen

Only some nausea and minor nerve damage one year after gk. Tell your neurologist about all of this. He or she is the specialist in longer-term recovery.

Hi Denny I had radiosurgery gk this past January and for the most part, ive had alot of pains on the side of my head and some memory problems, the big problem was the weard pains I would get just near or rite on the avm area, the neuro doc, said that it is normal, its the pains of the avm shutting down, to be sure , he sent me for a cat scan a few weeks ago and found the my avm has some calcification on it, which means its shutting down, the pains are normal and after talking with him I dont worry so much about the pains anymore, hope this helps some, Caroline…:slight_smile:

i had gamma in march and i have some minor nerve damage in the front of my head and daily headachs but that could be from anything i guess

where was ur avm? because my radiation oncologist said that if the avm is superficial u could lose hair

mine was deep at the back right off my head

well then i have no idea why u would lose ur hair, that was a big concern with me but my radiationi oncologist said i would be fine and knock on wood 5 months later i am…but maybe you had a higher dose than i did…

I had plenty of side effects from my procedure. First off I did lose hair or atleast ide like to blame that on the gamma knife and not bad genes but I lost my peripheral vision or a lot of it I had inflamation in my brain so I was put on a steroid and gained like 20 pounds in a month. I lost feeling in my right leg and still can not make a muscle in my right calf. I had all the worst side effects you could get but now im avm free and ide say im ok where im at with it now

I think its a shame that your not normaly told how the radiation will effect you, i was told it would not cause any problems i should find out if im avm free soon, but to be honest if i had the choice again id not gone under gamma knife

Jay said:

I had plenty of side effects from my procedure. First off I did lose hair or atleast ide like to blame that on the gamma knife and not bad genes but I lost my peripheral vision or a lot of it I had inflamation in my brain so I was put on a steroid and gained like 20 pounds in a month. I lost feeling in my right leg and still can not make a muscle in my right calf. I had all the worst side effects you could get but now im avm free and ide say im ok where im at with it now

Hi Everyone, I had gamma as well,did I have problems from it,to this day…im not sure,only because I get so many different answers from doctors ,im never sure what to think.I know that before gamma,I never had these head pains,not headaches,but sharp pains, heart beat sound in ears,sparks in vision,well doc says its not the gamma,but the avm,shutting down,could it be,who knows,I am still waiting on results almost a month now,because of screwed up docs here in florida,they say dont read the mri/doc will do that,I get to the office,they tell the place who took my mri/mra to read the results…and so I wait!!silly,Im not even mad about it anymore,just go with the flow.lol.anyways,I really dont know what to think about the gamma,EXCEPT!! I will not ever!!! get a halo put on again…unless its attached to wings and I can fly…hahaha

Ive been told i have high pressure in my eyes, never had this b4 gamma knife but cant be sure if its due to this, just seems i have had so many different health problems since i had this done i have had a private health check and have been told all the rest off my body is norm so can only think to blame it on the the radiation as never had problems from the avm apart from the seizure every 3mths, i no longer have seizures but miss then as felt so healthy after i had them
Caroline said:

Hi Everyone, I had gamma as well,did I have problems from it,to this day…im not sure,only because I get so many different answers from doctors ,im never sure what to think.I know that before gamma,I never had these head pains,not headaches,but sharp pains, heart beat sound in ears,sparks in vision,well doc says its not the gamma,but the avm,shutting down,could it be,who knows,I am still waiting on results almost a month now,because of screwed up docs here in florida,they say dont read the mri/doc will do that,I get to the office,they tell the place who took my mri/mra to read the results…and so I wait!!silly,Im not even mad about it anymore,just go with the flow.lol.anyways,I really dont know what to think about the gamma,EXCEPT!! I will not ever!!! get a halo put on again…unless its attached to wings and I can fly…hahaha