Having brain surgery while pregnant

So I was 21weeks when I had my avm. My partner got told we both probably wouldn’t survive. I had a bleed, i was at home thankfully, and had such a pain in my head, it was 10days I had to wait for surgery, all the while I was out of it, I can’t remember anything. My surgery was 14hours, they left my baby there because the doctors said that 2surgeries would probably be more harmful. We made it through. I spent a month in hospital, I’ve had to relearn to walk, clean, talk, etc. I had rehab after I left hospital for 3months. As my belly grew bigger I just wished things would go back to normal, but that wasn’t possible. My right eye turned in too so I had a patch on my eye for a few months. A week before my baby was born my eye came across enough so I saw a single vision. Anyways long story short, it’s been 7months and even though I look ok, I’m still learning to walk still learning to cook again, I can’t drive. I’m dizzy everyday, I don’t know if that will just get better overtime. I’m frustrated. Stairs are hard and I live in a unit and have 2flights. I guess in a way it’s made me get as far as I have. But my baby boy jack is my rehab and my miracle boy. I’m getting better for him and my partner :slight_smile: I just wanted to share cos I had a cold a few days ago and I just battled through it and did things even though I didn’t want to, but my partner is sick now and is acting like his dying lol oh the fun!!

21 weeks pregnant lol I didn’t sleep much last night!

Hi Zoe. Tell your other half to suck it in, and grow some (you-know-whats!!! lol). You are one positive survivor Zoe - keep it up.
And as part of your rehab, get him to learn how to clean. Part of rehab is to empower yourself - sounds like you are progressing slowly, and steadily ... that is great

WOW ZOE YOU ARE AN INSPIRATION!

You had a baby and dealt with an AVM at the same time and you are here to tell the story. That in itself is inspirational to a lot of ppl out there.

God bless and keep positive because you have crossed the ruff patches now and its a home stretch from here to recovery

EDIT: Just noticed you are from the GC. I was up at Surfers earlier this year and nearly collapsed and stayed over night at GC Public...great staff and service etc...AVM's will change your life with both ups & downs.

Thanks Tony, I feel bad that his sick, it’s my time to clean he did it for a few months when I couldn’t and I was pregnant. So I feel like I need to do it. I feel as though I’m not allowed to be sick now, I just have to suck it up lol! I have my MRI coming up in April, I’m not scared of the results just having it done. I know I’ve been through alot more but I wasn’t really myself. It’s on my mind everyday.

Thanks Adrian, yea my pregnancy wasn’t the best, I had the flu for the first 3 months I felt so sick, I had about 2months where I felt great lol. It was a pretty rough road but where both here! GC hospital are great, I can’t fault them, I still haven’t met my nurosurgeoen, I don’t even know what he looks like. But he saved not only my life but my beautiful baby boys too!!

Take care both of you and stay positive :smiley: xx

Wow, sounds like you have been through it all. But you and that little boy are here! I have to agree with Tony about your partner but I wanna send you a quote from Betty White about the very same thing. It should make you laugh but it's a little off color to share here. If you (or anyone else) wants me to share it, I'll send you an email. Just let me know. Hang in there and know this site is for you! :J

Thanks Suzy,
He really is amazing, although I haven’t slept since 11:50pm and it’s now 6:30am lol I’ve done 2feedings, and his snored his bum off the whole time lol. His parents are here on holidays and my partner is off for lunch with his dad today and I’m going shopping with his mum an hour away from home, I don’t feel like it at all but as I said, I just have to suck it up lol! Sometimes i feel like people forget that im still getting better and things are still wrong with me. Ill give u my email, it’s ■■■■■■■■■■■■■■■■■■. Ill check later for ur email :slight_smile:

Take care xx