Hemiparesis post SRS -brain swelling

I have hemiparesis (weakening on L side due to brain swelling) post SRS from one year ago. I am now tapering off Dexamethasone (steroid) and I am starting to "backslide" i.e. losing motor function and was wondering if anyone else out there in AVM land was on steroids for brain swelling, but is now using another drug to assist w/ motor function. Steroids are so awful on the body...there has to be something else. Has anyone heard of HCRF / Xerecept?

Thanks!

I have not heard of any of that, but I have just started taking Dexamethasone due to brain swelling from Gamma Knife almost 2 years ago. I was just wondering if anyone is having any of the side effects from the steroids? And, had the swelling gone down any when you saw the doctor? What dose did you take, if you don't mind me asking?

Thanks,

Kimberly