Hi Tricia-I totally get the sometimes-overwhelming frustrations.
I believe in taking a mental balance-approach; but eventually, you’ll come back to the reality of this stuff.
This video is rather lengthy, but it touches on just about everything, including our decisions, rationalization, etc.
Tricia,
Feel free to yell your lungs out. This is the place. We can all understand. An AVM changes lives, as much as we all would rather have our old lives.
Ron, as usual, is right. The advantages of Stanford and UCLA is that they see AVMs every day, so not much surprises them or scares them. Their experience with AVMs is a huge plus. Sometimes, it takes a call to insurance company to find out what it would take for you to go there. Sometimes it’s simply a referral from your PCP. Waiting and not knowing are very tough, believe me. Everybody here has had to wait for all these things. It’s maddening to feel stuck like that. I too am terrible at waiting.
A therapist may not understand a brain injury or an AVM, but talking to someone who is objective can be a big morale boost.
Best of luck! Feel free to yell and vent here anytime. Please keep in touch!
– Tina
Tina,
Thanks for the compliment, but be careful (grin), I'll get the big head and ask for a raise here.........................
Take Care,
Ron, KS
thank you tina i will keep n touch forsure