I Wanted to Talk to Someone

Support
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I Want to Talk to Someone for me … for my thoughts … for my fears

I was diagnosed with an AVM in my right leg when I was almost two years old. Initially I believe that I could manage avm with therapies. I have had a lot of surgeries over the years, embolizations and treatments, but they were unsuccessful as my arteriovenous malformation grew back and reborned in my entire leg. I remember that I had severe pain day and night and temperature problems in my leg that makes me pray for a miracle …. for a successful therapy … for a solution.

I at the age of 15 y. old I had a right above knee amputation relating to the arteriovenous malformation and because of gangrene. I had a series of embolization therapies in my country and a hope that my huge problems with AVM was in the end.

Unfortunately my AVM is very extensive and always come back in my amputating leg with a lot of problems (pain, swelling, high temperature and pain … burning pain). In addition my doctor found a small aneurysm which is big and make me anxious for my life. One more worst thing that happened in my life are some wounds that open in my amputating leg and don’t heal and keeps me in bed for months for days.

My best years of my life was full of hospitals and doctors but I had never ceased to hope and pray…. Until now. I don't think I believe in God anymore … I don’t think I believe in miracles anymore. Avm change my life and my future.

Every day every week every month I feel worse … I feel tired of pain … tired of my life and I worry for my future.

I wanted to talk … for my thoughts … for my fears and I want to thank every one who read me

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Tania...It must be so difficult for you..Please know that we are here for you...There is a chat on this Network, if you want to talk.

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Hi Tania. I am so sorry that you have suffered pain so much in your life. Perhaps the miracle is that we now have this site to express our feelings about this horrible beast. Yes…I refer to an AVM as a beast/monster. I will be praying for you!

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Hello, Tania

I am so so very sorry that you continue to experience such pain. Please do not despair. God is still on His throne and He loves you very much. He will draw near and intervene in your life as you trust in Him.

You have touched my heart. I promise to pray for you, for relief from your pain, for wisdom for your doctors, for grace for the friends and family in your life, and that you will be able to know and find joy again in God's love for you.

Bless you, Tania, on this Easter Day,

Mike N

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You are an angel ... thank you so much

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I need your prayers ... many thanks from my heart

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thank you very very much

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I'm sorry for everything you've gone through and I hope that things (even the little things) get better just so that you have a better day/week/month and future <3

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Your case is same with my brother. he has avm at left leg. this monday, 23 april he will doing above knee amputation because of gangrene. he's 18 y.old. hospital is our home. i hope you and my brother will survive until the end. May Allah bless you. InsyaAllah.

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I’m so sorry. I was crying so hard before replying. I know I feel like u do allot but I want to be ur friend. I’m here. I know it’s so damn hard to want to keep going especially with ur whole life forever changed. I really can’t understand what’s its like to lose a leg except I was a quadriplegic for five years. Then after another surgery I got feeling back like 25percent and it’s soooo painful. I hate my life and I understand why ur so upset. Even though I have them. They hurt like its knives stabbing me over and over. Can u get a prostisis. Spelling sorry. Anyway I’m up all night and day. Sleep just doesn’t happen due to the two ribs the removed. And my legs on fire. I’m here no matter how u feel. Love ur new friend. Jen lynn

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It is very hard to explain in words the frustration of you or a loved one (In my case my 7 year old daughter ) suffering from an AVM , the consistent visits to the hospital which i agree becomes your second home, we've been there 70 times in one year ! Tania, all i can say is be strong, have faith that there will one day be a cure but we all have to push the surgeons hospitals governments and anyone who wants to listen that we cannot be forgotten .There are well over 4000 members on this site whose day to day life is blighted by this horribly unpredictable illness and awareness is being raised by i just hope and pray Tania that one day the clouds lift from your life... In life we often go through the motions without having a purpose...Please keep using this site and keep talking..Never give up.... You are not alone :)x

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Mayce u re tired of this situation.I too.AVM isnt a simple question anyway,However u cant give up now. I believe that we can stand against all storms in our life.So it must be!

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Thank you my dear Alinta. Thank you so much.
Many kisses

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You make cry ... I read about your brother and I felt so sad. I hope all goes well with the amputation.I am prayin for him .... my heart is with your brother and your family my dear leena.

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My dear Jen Lynn thank you so much for your lovely words and for your support.
I read about you .. I wish I was there to give you a big hug.
I am happy you are here ... you are a new angel for me .. all my friends here are my angels.
Many kisses

ps.: yes I was wearing a prosthetic Leg. Unfortunatelly the last months I walk with handles because of the wounds that open in my amputating leg and keeps me in bed.

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It is hard at fist, we are all here together with a similar story. My name is rebecca, feel free to talk anytime!!

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I just want to say many many thanks for all your words George. I feel fortunate that I have found you all ... you make me feel stronger George.God Bless You
Give many kisses to Nikole

ps.: ευχομαι τα καλυτερα για την μικρούλα Νικόλ ... σε ευχαριστώ