Maybe you’ve already seen this but recently there was a study published by University College London Institute of Child Health and Great Ormond Street Hospital (GOSH) .“They found four faulty genes that could trigger the condition, all involved in the signalling pathway between cell surface receptors and the nucleus. The same gene mutations are also involved in the growth of many cancers. There are several licensed cancer drugs that target the faulty RAS-MAPK pathway.
The discovery means doctors now have the potential to treat AVMs with cancer drugs.” Here’s the link for the full article https://www.bbc.com/news/amp/health-43119315
I don’t know if that treatment would be applicable for your avm but thought I’d share just in case
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