# Intoduction, Sharing and Caring

**URL:** <https://avmsurvivors.org/t/intoduction-sharing-and-caring/22998>\
**Category:** General\
**Created:** [October 14, 2019, 7:31pm UTC](https://avmsurvivors.org/t/intoduction-sharing-and-caring/22998 "2019-10-14T19:31:01Z")\
**Posts on this page:** 1\
**Showing post:** 12

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**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\
**Post date:** [October 21, 2019, 8:56pm UTC](https://avmsurvivors.org/t/intoduction-sharing-and-caring/22998/12 "2019-10-21T20:56:05Z")

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Hey, you’re welcome. I’ve been pretty much where you are and it’s a big shock. I found talking to the people here who met me as I was in a bit of free fall really helped.

The Cognard classification is here:

> [@Cognard and Borden Classifications for Dural AVF](https://avmsurvivors.org/t/cognard-classification-for-dural-avf/20868):
>
> Classification of dural arteriovenous fistulas (DAVF) are different from regular AVMs and are not always recommended as necessary to treat. There are two main scales: Cognard and Borden:

I remember talking to another person who had a Cognard I DAVF and was advised that intervention was not considered necessary but he wanted it sorted, so he went ahead and had an embolisation I think. I’m sure mine was further up the scale. I am convinced I had reflux flow going on.

I’ll find a link to my story for you. In all, it came out just fine. It took 1-2 years for me to feel near enough normal and yesterday and today my head feels not quite right but the docs have plugged the hole and can’t see anything else to do, so I put it out of mind now, until I get any firmer sign that there could be anything to do.

I’m a complete operation wuss, so if I can get through this, anyone can. Honestly.

I’ll find you that other link.

Cheers,

Richard

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