Is there a light at the end of this tunnel?

Hi Tamer,

I’m so sorry to hear what your son (and you of course) are going through. My daughter’s AVM was also in the posterior fossa (right side of her cerebellum). The bleed put pressure on her brainstem but fortunately there was no permanent brain stem damage. Her rupture occurred when she was almost 10 years old in January of 2017. Now she is almost 19 so we have the luxury of knowing what nearly 9 years of recovery looks like. I’m happy to share with you that she has had an excellent recovery despite what many medical personnel told us back in 2017. She also had to have a tracheostomy and a feeding tube in her stomach. She was essentially paralyzed for 5 months and did not start speaking again until 6 months after the bleed. Even though it’s been several years I have not forgotten how lonely and frightening the experience was. She was in the hospital for a total of 8 months and I lived with her at the rehabilitation hospital away from the rest of our family for 5 of those months. Like Dick said please find ways to take care of you because you will need to be strong for many months (? years) ahead. This experience shattered our lives for a few years. I hope you have supportive friends and family.

There definitely is a light at the end of the tunnel but you’ll need to rejoice in the small amounts of increased light as your son’s recovery moves forward.

Nearly 9 years later my daughter is an amazing young woman. She’s in her first year of university, she has a driver’s licence and a part time job. We are truly blessed. Please don’t hesitate to ask me anything about the recovery. Sending you strength and hoping your son’s recovery is as remarkable as my daughter’s.

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