Recently had a doctor make it official that I have KTS to go with my avm. I’ve spent my life researching avm and making sure I’m an informed patient. Now, I feel a little lost again. Does anyone have experience with this?
I did a search on here for you…
http://www.avmsurvivors.org/main/search/search?q=Kts
There may be some info there that can help you!
http://rarediseases.about.com/od/klippeltrenaunayweber/a/ktsyndromes.htm
This is another website that may inform you! x
Yep, thank you both. I’ve been reading. I’ve been classified klipple trenauny webber syndrome. I was just wondering if there was anyone else in the extremity group with this diagnosis.
hi amanda..i have kts..i just found out what it was a few years ago even though i was born with it..which extremity is affected with your kts? and what questions do you have?
It is my right leg. My avm is in my foot. How have you been “treated/ monitored?”