Loosing voice

Hey everybody.

It has been almost 6 months since my AVM ruptured, during which I had undergone Gamma Knife surgery. While my headaches have drastically died down to a significantly more manageable level, I’ve developed something odd. Prior to my AVM rupturing I lost my voice usually no more then once a year and only when I was very sick. However since the bleed I’ve begun to constantly loose my voice, which now fades in and out throughout each day. It sounds almost like I’ve been screaming too much or that I’ve smoked two packs of cigarettes straight.

I was told that I might loose my voice or get a sore throat temporarily post-Gamma Knife, However it has been months and it seems to be happening more consistently rather then dying out. Has anyone else had something like this occur? I moved several countries away from my neurosurgeon and he is generally impossible to get hold of, so I’m turning to you folks!

Thanks

I haven’t heard of that(yet). My first thoughts are that it has nothing to do with the Gamma Knife. You may want to check into it with an Ear/Nose/Throat specialist and go from there. ?? I don’t know. Keep us posted…we can hear you loud and clear! just kidding…:slight_smile:

I’ve noticed that my voice does get “raspy”, sounds like I am loosing my voice. I’ve thought it had to do with the steroids. Are you on those?

Thanks for the replies guys! I doubt it had anything to do with the Gamma knife either Sandie, I’ll book an appointment with the specialist if this keeps going on any longer. No Brian I’m not on any sort of medication anymore past paracutemol on occasion. I guess I’ll just wait it out and ask the neurosurgeon the next time I see him.

One other idea would be to go to your regular doctor or a clinic and have it checked. It could possibly have nothing to do with the AVM or treatment, right? And if there is something up with your voice box/vocal cords/larynx, you should have it checked out. That sounds quite strange especially if it is happening every day.
I also found this info: Neurological Diseases or Disorders: Hoarseness can also appear in those who have neurological diseases such as Parkinson’s or a stroke, or may be a symptom of spasmodic dysphonia, a rare neurological disorder that usually affects only the voice, but sometimes affects breathing.
Should you be checked for brain swelling from the Gamma? My son’s brain sweling caused his right leg to go paralysed/seizure and maybe this could be what is causing your vocal cord to stop working?? Just some thoughts to consider.
Please go and have it checked sooner than later, Mo. I’m a mother and mothers worry!

Thank you for this Joy, your reply was very sweet. I’m sorry to hear about how the brain swelling effected your son, I can only imagine how difficult that must have been for him to go through, and hope he has found the tools and will to cope with it.

I’ll be sure to look into the possibility that mine might be getting out of hand as well. For now I feel I’m not going to worry myself too much about it beyond being concerned, and give it one more week before I check in with a GP if this continues on. Perhaps also booking an appointment with a local neurologist who will hopefully be able to provide some insight in the absence of my neurosurgeon.

Again, thank you Joy, and thanks to everyone else for your replies, advice, and concern!

Joy said:

One other idea would be to go to your regular doctor or a clinic and have it checked. It could possibly have nothing to do with the AVM or treatment, right? And if there is something up with your voice box/vocal cords/larynx, you should have it checked out. That sounds quite strange especially if it is happening every day.
I also found this info: Neurological Diseases or Disorders: Hoarseness can also appear in those who have neurological diseases such as Parkinson’s or a stroke, or may be a symptom of spasmodic dysphonia, a rare neurological disorder that usually affects only the voice, but sometimes affects breathing.

Should you be checked for brain swelling from the Gamma? My son’s brain sweling caused his right leg to go paralysed/seizure and maybe this could be what is causing your vocal cord to stop working?? Just some thoughts to consider.

Please go and have it checked sooner than later, Mo. I’m a mother and mothers worry!

My voice was messed up when they gave me an embolization that gave me a stroke.
I can talk but it is forced air. My voice sounds robotic now, speech therapy did help.
I was given a pons stroke. The pons is part of the brain stem.
My avm is in the back of my head.

I agree with Joy, check it out.

Peace,
Ameenah