I will definitly let you all know. We can not control what happens to us, but we can control how we react! Our attitudes are so important! It is for our benefit to have a good one :D
I am sorry you had to go through that Patti! Thankfully you were able to find closure!
Back around 2006 I went to the ER due to dizziness accompanied by a headache. The headache was not that bad. The doctor who saw me did routine examination and said i had nothing and that i could go home. Upon my insistence she gave me an order for an mri but said “if headaches persist” and said that she frankly did not think i needed an mri, that the headache was just caused by pressure. I debated having an mri done but becaus of what she said i did not have a sense of urgency and ended up never having one done. Fast forward to Feb. 2011 my AVM bled affecting mainly my right motor area andsentencing me to a wheelchair. If i had had the mri it wouldve been found no doubt as i subsequently to my stroke had an mri and the avm was clearly seen. To this day i want to go to the ER doctor who saw me and say “so, it was nothing and there was no need for an mri, huh?”
That is hard thing to face! I am sorry you had to exprriance such events! I wish all the best for you! If you ever need to vent, I am all eyes(lol)
I was recently diagnosed with a 3.62cm AVM and the first neurosurgeon I met with recommended that I do nothing and have another MRI in 6 months. I joined AVMSurvivors and started reading everyones stories and decided to get a second opinion. I have had an angiogram, another CT & MRI and will have CyberKnife treatment in 2 weeks. I feel blessed that I haven't had a bleed or a stroke and will hopefully be rid of that risk in a year or so. Definitely glad I went for a second opinion.
I had a stroke on 4/20 and was hospitalized for 3 days. They did a Catscan, MRI and an ultrasound of my corrotid arteries and the hospital Neurologist told me all came back "squeaky clean" but gave me shots of blood thinner in my belly and an aspirin while I was there. He told me if I wasn't any better to come back to see him in 3 weeks!
I went back to my family doctor 2 days after I was released and he ordered an MRA and that showed him I had either an AVM or Aneurysm. He referred me to another Neurologist who I saw and was supposed to order a CTA but his office staff never did so after 4 days of waiting, I called my family doctor who immediately ordered the CTA and the report came back stating I had an AVM or a slight possibility that I had an Aneurysm near my brain stem.
If it wasn't for my family doctor, I would have never found out about my AVM. I am seeing a new Neurologist at University Hospital in Cincinnati on June 5th and we will go from there.
Wow, kistina! Thankfully you had a great family doctor! I hope you are doing well now! Avm's on the brain stem are pretty harsh!
I am so glad you are. Ask about embolisation. I believe avms are the safest at 2.5 cm with radio.
Thank you Melissa! My husband who is our city's Fire Chief has made a formal complaint against the Neurologist with the hospital since he spent abotu 3 minutes with me in 3 days and basically blew me off even though my face was droopy and I could barely move my left side and the ER Doc is the one that ordered all the tests.
Thank goodness I found this website! I still do not know exactly where it is located and how big it is but the second Neurologist that I saw said it is in a terrible spot near the brain stem. It happened at work and I've been off since then which is a blessing since the headaches, dizziness and occasional vomiting with the dizziness makes me difficult to function. All I want to do is sleep! I walk with a cane for now and am not permitted to drive.
I am learning a lot from the Members from this page so thank you so much for sharing your story Melissa!
4/20 that's not that long ago. I am so glad you are doing well! I had my stroke on 3/8. I just got rid of my cane fairly recently. Are you doing P/T? That helped me alot!
Hi Melissa - I'm sorry to hear about this - I think that I'd be rather peeved to say the least.
On a totally different topic, you mention statute of limitations...how is that determined and how did you find out about this?
That is not exceptable...i feel for you and i had a CT scan when i was 22 and the AVM didnt come up but at 30 it did...that scares me cause i wonder if the AVM was there from birth at times...keep the fight going and be positive & God bless
I was born and raised in florida. That is where I saw the neurologist that said nothing was wrong. In Florida you have two years to file a lawsuit. The evidence you provide to court can not be older that four years old.
It is my understanding that you need a contrast ct to see the avm. Thanks for the support! Wishing you well!