More than 1 avm?

I have been diagnosed with now 3 avms, one has been removed with problems but the other 2 were discovered later and I was wondering is this commom and dose it raise my chances of further injury or death i am having another mri next week to check on the progress of all 3 but doctor says the others are small the moment and can rupture at anytime what do you all think? thanks for the imput

Yes, you can have more than one. Liam on this site had more than one and they can also grow back if they do not get it all. I am 11 years post surgery and mine is now growing back.
If Liam is still on this site, not sure because I have been away for a year and not keeping up, he would be a great person to talk to about this. He has vast knowledge and is always helpful.
Take care and try not to worry (the added stress can cause a rupture)

blake,
sorry to hear this news…from what i have been told by specialistists and research having more than one avm is rare… as far as what to do i think that is your decision and something that needs to be discussed with the doctors…what options have you been given? where are the avms located in the brain ?.i am so sorry you have to go through this again…stay strong you are in my prayers

Thanks ALicia, Hope you are well, I am just finding out about the other 2 I see my surgeon this month but he has not given me any options He kind of said it matter of fact which bugged me but I gonna ask a lot of questions this next time, I didnt get too last time because of the brain infection was happening. But thank you so much for being there Ill keep you updated thanks again for being there

Alicia said:

blake,
sorry to hear this news…from what i have been told by specialistists and research having more than one avm is rare… as far as what to do i think that is your decision and something that needs to be discussed with the doctors…what options have you been given? where are the avms located in the brain ?.i am so sorry you have to go through this again…stay strong you are in my prayers

Thank you susan so much if it wasnt for this wonderful website and all you great people I feel i would not know very much as the doctors can withhold info. thanks I will look for LIam thanks again

Susan T. said:

Yes, you can have more than one. Liam on this site had more than one and they can also grow back if they do not get it all. I am 11 years post surgery and mine is now growing back.
If Liam is still on this site, not sure because I have been away for a year and not keeping up, he would be a great person to talk to about this. He has vast knowledge and is always helpful.

Take care and try not to worry (the added stress can cause a rupture)

Blake, I am extremely new to this site but I did want to respond to you after reading your post. I had an AVM in my right frontal lobe removed via a craniotomy back in 2004. There was an aneurysm hidden beneath it that was found when they did the angio after the procedure (and, of course, I was already closed up)…I had that embolized in 2005. I thought I was completely done with AVMs and aneurysms!

Wrong.

I found out a month ago that I have bilateral pulmonary AVMs (which is an AVM in both lungs), an AVM in my spleen, and an aneurysm in my splenic artery! Since the lung AVMs are both rather large I am having those embolized on the 18th. The one in my spleen is only 1.5mm so we’re just going to keep an eye on that one with routine CT scans (or was it MRIs? Can’t remember!). I also found out the reason I have had all of these AVMs is because I have a condition known as HHT (also known as Osler-Weber-Rendu Syndrome). It is a hereditary vascular condition. I’ve always had nosebleeds since as long as I can remember and I’ve had migraines (with an “aura”). Those are indicators of HHT.

So yes, it is possible to have more than one AVM. I don’t think it’s very common but it does happen. Try not to spend time worrying about possible ruptures! Stressing yourself out isn’t going to do you much good! If the other two AVMs are small and the doctors just want to keep them monitored then I wouldn’t be overly worried. Best of luck and take care!