Hi.
We’ve touched upon ARUBA elsewhere today.
My reading of ARUBA and a rebuttal of its findings was that it was sufficiently rebutted by other doctors that basically it doesn’t help us to decide whether to treat or not treat.
The one thing doctors do seem agreed upon is that once a bleed has occurred, the question of whether to act goes away.
As I’ve said in another thread today, it would be great if there was a reliable double-blind study that shows us some circumstances when choice A was best v choice B. From my reading of ARUBA and the rebuttal referenced above, I don’t believe there is a study that really helps us to decide.
However, outside of such studies, our doctors have their own experience and one assumes a longer and longer history of choosing mode A v B v C v “conservative management” and do give us advice based on their skillset, their research and their own outcomes, so if your doctor advises conservative management, then that is based on such factors. Often it is a difficult thing to choose “no action” but it seems to me foolhardy to go against a doctor’s advice and experience.
What do you know about your daughter’s AVM and the recommended route(s) forwards? Have you looked into a second opinion?
Lots of love, and sorry for being slow to write back,
Richard