After all these years i have never left my city and got on a plane before...never got to do this when i got married 2 1/2 years ago due to work and then my AVM, operation/recovery etc....
WELL...............I finally took a trip to Australias Gold Coast with my wife for 4 nights and even though i was terrified of flying and worried i havent had a 100% all clear from my Neuro that the AVM hasnt come back took my chances.
I HAVE BEEN SCARED TO TRAVEL OUT OF TOWN DUE TO MY AVM!!!!!!!!!
On the 3rd day there i was at the lovely Sea World for 10 minutes and nearly collapsed due to really bad dizziness. I had pressure on my head that felt similar to my brain hemmorhage. I had pins and needles in my legs and the back of my head and neck.
I was terrified that i was in unknown places with nobody we knew out here and never had felt like collapsing or being dizzy in my life. I was taken to ER due to my history and the doctors were concerned i may have suffered a bleed again & possibly my clips on the ateries/veins from my surgery may have given away.
Due for a CT in February and catch up with my Neuro the hospital ordered a scan after 5-6 hrs in ER anyway.
The ER Dr informed me a Neuro was going to come and see me after the results were in................de'ja vu alright after 2 hrs later he tells me the results were back and i would be staying in hospital........MY HEART SANK! I was terrified and asked for answers but told to wait on the Neuro........i prayed to God and looked at my wife so sorry that my fear had come true. I didnt want to call my family until i knew what exactly was wrong.
Neuro came and saw me and confirmed there was NO BLEED/NO AVM/NO REGROWTH OF AVM REMOVED in 2011. She stated they were only keeping me in for 24hrs for observations.
THANK YOU GOD! I was able to get out 24hrs later exactly with good news but still was very dizzy. It wasnt heat stroke or anything of that nature as i drank plenty of water...and all my blood tests came back just fine. The Dr's assume it may be a virus that i caught and now as im at home just after getting back late last night i still have minor headaches & dizziness.
Some say it may be vertigo, some say stress, some say virus.....I think i suffered from a virus and it was not as major as what i originally thought.
So in saying that i wanted to share my scare with everyone here and say THANK YOU GOD for everything....even though i was scared i can honestly say i had a great trip.
Adding to this it may be encoragement for those in my shoes worried about their AVM experiences as it does traumatise us all in its own way. This has made me a stronger person and i now have excellent news for my 2yr check up in Feb with my Neuro.