I just wanted to let everyone know that my 18 year old daughter had an AVM Removed on the right side of her neck this year. We went to Duke University Hospital and had Dr. Zomorodi. What an amazing surgeon and human being. My daughter's surgery went very, very well and we felt so comfortable. Dr. Zomorodi and his staff are the most wonderful people we have ever met. They are incredibly knowledgeable and extremely professional. I would recommend Dr. Zomorodi to anyone.
She had precautionary scans on her retinas and kidneys. Everything went well. My daughter is doing very well and is planning on attending college in the fall.
Thank you for the wonderful information we got from this network. Please let me know if their is anything we can do to help anyone.
Best wishes for your daughter's full recovery! Be watchful for signs of recurrence (heat, redness, pulsing) and report anything of note right away to your doctor's daughter. Followup scans are generally anywhere from six months to a year to monitor for recurrence. These are important so that any residual avm can be dealt with sooner rather than later.
My husband, who has an AVM that could not be removed with surgery because it was on top of the right foot portion of the motor strip also saw Dr. Zomorodi, who was fabulous. Dr. Zomorodi and his PA were both kind and professional, and clearly very knowledgeable. They consulted with Dr. Kirkpatrick at Duke, an oncology radiologist(and he has a little Ph.D. in engineering as well), so that my husband could have stereotactic radiation, which may even have reduced the size of his already small (less than 1 cm) AVM within six months (though Dr. Kirkpatrick was not sure as this would be highly unusual but we are going with the possibility anyway!). Highly recommend both of these Duke physicians. We were in some ways glad my husband did not need surgery but would have trusted Dr. Zomorodi if he had.
Thanks for sharing your daughter’s success story. And by sharing it, you have shared some information that is new to me that I would like to ask you about.
I had an AVM removed from the left side of my neck a few years ago. No ever said anything to me about retina or kidney scans. Could you explain why those were done?
Congratulations on your daughter's successful surgery! It's always such a wonderful feeling to be on this side of it! I pray her recovery goes well! Merry Christmas and a VERY happy New Year!
Outstanding news! I have one in my right neck and face which give me much pain. One of these days I will have to have another intervention so it is good to know about these other doctors and the improved techniques and surgical procedures they undertake. Gives me hope! Thank-you for sharing and may God bless your daughter and your family as she recovers. R/Steve
Outstanding news! I have one in my right neck and face which give me much pain. One of these days I will have to have another intervention so it is good to know about these other doctors and the improved techniques and surgical procedures they undertake. Gives me hope! Thank-you for sharing and may God bless your daughter and your family as she recovers. R/Steve
Dr. Zomorodi requested that we have her retinas and kidneys checked as a precautionary measure. Apparently those are two areas that are prone to AVMs if you have them in your neck.
Thanks for a wonderful update on your daughter's AVM removal. As an extremity Survivor myself, I will get a CT scan every year, until year 4 or 5 to make sure it has not returned, so please make sure you set up an appt in a year or so to get a clean scan. It's peace of mind if nothing else:).
Our medical technology/advancements now are so vast, that that is WHY so much of us AVM survivors ARE are here and on this site, right?!? If this was a few decades ago, I KNOW I would not be alive with my AVM problems.