Need information about pelvic AVMs

Hello everyone,

I am new to this wonderful site and am slowly learning how to navigate it and find resources. I am a 62 year old retired RN who has battled a large left pelvic AVM for the past 6 years. I have been through 9 embolizations, countless hospitalizations and tests and still continue to battle pain levels from 4 to 9 on a daily basis.

If there is anyone out there who has had or currently has a pelvic AVM, I would be most willing to share any information I have and would welcome finding out if you too suffer with pain and what if any treatments worked to reduce the pain.

Thank you for reading this.
God bless all of us who suffer and their families,

Sincerely,

Kathy Kahle

Hi i have a pelvic avm too.I am 66 years old ,i would like to share.