I had Dancermom inform me that there was no group for AVMers who suffer from HHT (otherwise known as Hereditary hemorrhagic telangiectasia or Osler-Weber-Rendu syndrome). She suggested that considering I have HHT I should make a group, so I did!
http://www.avmsurvivors.org/group/hht
Feel free to join if you have HHT, think you might, or even just want to learn more :)
Here is also a link to the official HHT website which is full of more detailed information: http://hht.org/
Thanks so much,
Alinta.