Hello to all. I am new to the site and stumbled on it search for the walk in San Fran. I am an AVM Survivor 3 1/2 years, 2007. I live with mild side effects from a complete & successful removal. I had the AVM in my left lobe partiel optical part of my brain. My mother also suffered a stroke from blood clots,during my diagnosis time and sadly is now paralyzed. It has been a long hard road & dont know what I wouldve done without my DH & his family. Thanks for letting me join.
This group is nothing but amazing. I was just diagnosed on Feb 14th 2011 and have been going through an emotional rollar coaster. People from all over have given me advice and make me feel like im not alone because your NOT. Don't be afraid to reach out about anything and everything.
I am so sorry to hear about ur mother. My thoughts and prayers are with you and your family.
thank you, It is hard being first diagnosed I know I was scared inside but had to not show it around my kids. I have 4 girls and had to be strong for them. I would have my moments in private with DH and that helped me alot. The sucky part was not having my mom there. Thank you and I will pray for you hon. Hugs…
Welcome Kat!, I too just recently joined, just in the past month or so. I had my AVM in July 2009 my right Temporal crashed a week after my 40th! You,ll meet nice and informed friends hereYes it is a long and wearing journey, but its better with friends to walk at your side!
Welcome to the group Kat and my deepest sympathy in the loss of your mother. This is a wondeful forum and everyone here has been a lifeline thru this very emotional and difficult recovery!
Hi Kat. Be sure and go to the main page and scroll towards the bottom and look on the lower right hand side…you will see the sub-groups…scroll even further down and click on view all. There maybe some that you will want to join!!!
thank you for all the welcomes it is nice to know that we arent alone. I know it was a struggle in the begin and with time I have learned to cope. It does get tiring at time though…