Novalis Tx Radiosurgery system

Has anybody had treatment with the new Novalis Tx Radiosurgery system for a brain AVM, and also has anyone with a peripheral cranofacial AVM had treatment with this system ?

George, Steve Ruby Barrett mentioned receiving treatment with Novalis on his page. His avm involves the tongue, palate, pharynx, and nasal passage. He hasn't been on for awhile, but it sounded like it was working for him. Are Nicole's doctors talking about trying it?

Hi George!! My brainstem AVM was treated with the Novalis TX machine July 2011. It was explained to me that the machine is very flexible in controlling the dosage/delivery of the radiation in order to reduce the damage to surrounding tissue. The treatment itself was painless-I drove myself to/from the sessions without a problem. The only issue I had was wearing the facemask. I am mildly claustophobic to it was hard not to freak out!! I went for treatment 5 days in a row, one hour each day and during each session they changed the position of the beam 10 times. Hope that helps!!
Godspeed!!

Thanks for your reply Stephanie, My Daughter Nicole (7) is currently being treated for an extensive facial AVM on one side of her face, She has had 4 embos at the moment, and we are just looking for options, just in case the treatment does not have the desired affect.; I really hope the there are advances in research so that better treatments can be found.

Thanks for replying

George x :)

Hi Stephanie hope your well , just contacting you to see how your getting on after your Novalis treatment ? Nicoles already had a 5th embolization ! At the moment there are only two centre's in the UK that offer Novalis treatment, but i'm just trying to find out more information as to whether this treatment would work for craniofacial AVM and if this is offered for young children as my daughter Nikki is now 8

George X