Thank you all for the warm welcome! It feels like a safe family here. I really appreciate the chance to connect. So, thank you! I have a question that I don't have proper words for. I am hoping some of you can help me better understand something I am experiencing with a member of my family. So here goes... Is there 'time travel' for AVM survivors who have petit mal seizures? I mean can a person have a seizure and when it's over they are emotionally at another place they were maybe 6 months ago? I really need help understanding the changes in personality that occur after episodes of petit mal seizures. And I need help in how to best help without agitating the situation.If you know anything, please share with me... Thanks!
Hi.....i can definitely say that there will be personality changes for AVM survivors... but petit mal seizures i can guess it must be due to panic n feeling insecure....i can relate to what the situation is when u go thru that phase of short-time seizures...
with regards to..how to support a person who is going thru this phase..... the person must be made to feel very secure(but in the normal way of life)....may be the regular way o expressing our love n affection n small things which makes them feel special....
with regards to being emotional about the past events ....yes....in my case i still have such symptoms even today....where i tend to dwell upon some unanswered scenarios in my life..may be which has happened some 7-8 yrs ago...
hope this helps...good luck..
Santhosh
Thank you Santhosh. It's like I am having a wonderful moment with my AVM family member and then they have a petit mal seizure (due to damage from craniotomy several years ago and the now aging process of the brain) and when the seizure is over they are upset with me because they think we are in another time and space where we were not getting along. It's like the memory 'skips' like a record and each seizure puts us in a different space relationally. That is why I am having a difficult time because I feel like my presence is a trigger if they believe we are not getting along. :( This is a VERY important relationship! And they don't want to acknowledge that anything abnormal is going on. Not sure how best to help.
ohhhh.....ur response made me to see the visuals of whats happening here at my home...i too am facing EXACTLY the same trauma...i have always been unhappy with my family for not understanding what exactly is the trauma i am going thru...(the same scenario - time & space skipping etc)...though i am unhappy with my family...i respect their limitations as well.bcoz common can understand what it means to go thru a fever or common cold...but he cannot understand what an avm survivor goes thru emotionally n psychologically... :)