# Please share any advice **URL:** \ **Category:** New Member Introductions\ **Created:** [November 8, 2025, 5:51pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493 "2025-11-08T17:51:55Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![Nana](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@Nana](https://avmsurvivors.org/u/Nana)\ **Post date:** [November 8, 2025, 5:51pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/1 "2025-11-08T17:51:55Z")
Hello, I have a brain AVM. Two years ago, after a seizure, I had an angiography and then radiosurgery. They couldn’t remove the malformation completely because it’s too large — doing a trepanation would have too many risks, from disability to even death. After two years on neuroleptics, my doctor scheduled another MRI to check the situation. I feel anxious sometimes, because there’s a chance of another seizure. I’ve read that many people wear medical ID bracelets with their diagnosis on them. It seems like a useful thing. But in Korea, they don’t really have that. So I started wondering if there’s something else I should know or do. Please share any advice. I also realized that, just in case, I should give my parents the password to my bank card.Also thought about this: if something happens to me, I would like to be an organ donor. Btw how often do u do MRI? ---
**Author:** ![Adrian1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/adrian1/32/3051_2.png) [@Adrian1](https://avmsurvivors.org/u/Adrian1)\ **Post date:** [November 8, 2025, 11:17pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/2 "2025-11-08T23:17:26Z")
Im sorry to hear about your diagnosis & curious if you are taking any medication for the seizures? I would still think you can wear a bracelet & even possibly add something to your smartphone in the event of an emergency… I’m confident someone here will be able to provide better detailed information… In regards to the MRI question I was getting them done annually when getting my check ups… God bless! ---
**Author:** ![Nana](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@Nana](https://avmsurvivors.org/u/Nana)\ **Post date:** [November 9, 2025, 6:33am UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/3 "2025-11-09T06:33:13Z")
Thank you, Adrian🙏🏼 Yes, I take Keppra (Levetiracetam 500mg). Initially, the doctor said I would take the medication for a year, but I’ve been taking it for two years now. And neuroleptics to control emotional state and intracranial pressure. Could you please tell me where do you usually buy such bracelets? ---
**Author:** ![JD12](https://avatars.discourse-cdn.com/v4/letter/j/ad7895/32.png) [@JD12](https://avmsurvivors.org/u/JD12)\ **Post date:** [November 9, 2025, 12:04pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/4 "2025-11-09T12:04:15Z")
I have attached a link for you to consider. I use one know on my watch strap that has my name, date of birth, and my wife’s name and phone number. I have used other types of bands to that identified contacts. Now it is mostly in case I crash my bike as I ride a lot, but also should I ever have a second seizure(hope not) while in public where no one knows me. The watch strap tag works great. > **[runner landing page](https://www.roadid.com/pages/runner-landing-page?utm_source=google&campaign_id=23211015545&ad_id=781735086621&utm_medium=cpc&utm_campaign=%7Bcampaign%7D&utm_content=186604277983&utm_term=&gclid=CjwKCAiAlMHIBhAcEiwAZhZBUrMcQtrUIjzxi9i4SI6Zn_dJjC7-qMgfITt11lF1sDSwykyPX24_-hoC4dwQAvD_BwE&gad_source=1&gad_campaignid=23211015545&gbraid=0AAAAAD6s2GErEzNQjQjwZTLWmP4rsYwU8&gclid=CjwKCAiAlMHIBhAcEiwAZhZBUrMcQtrUIjzxi9i4SI6Zn_dJjC7-qMgfITt11lF1sDSwykyPX24_-hoC4dwQAvD_BwE&category=all)** > > runner landing page ---
**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\ **Post date:** [November 9, 2025, 12:22pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/5 "2025-11-09T12:22:10Z")
@Nana In most mobile phones these days there is a “safety” or “health” app. I use an android phone, so mine has a “safety” app. If I add my medical details into there, people can access the information from the emergency call access on the lock screen. So that’s something you can do. I bought one of these silicone bands, which was very comfortable to wear and perfectly ok 24h a day, in the shower etc. I am sure they post abroad to wherever you are. > **[Deluxe Engraveable Silicone Bracelet BROAD BAND](https://theidbandco.com/deluxe-engraveable-silicone-bracelet-broad-band/)** > > Providing a huge range of medical ID jewellery and products, sports ID and kids ID. All personalisation done in-house and rapid dispatch. They have different styles to suit whatever you’d prefer. Richard ---
**Author:** ![Adrian1](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/adrian1/32/3051_2.png) [@Adrian1](https://avmsurvivors.org/u/Adrian1)\ **Post date:** [November 12, 2025, 12:53pm UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/6 "2025-11-12T12:53:14Z")
Im glad to hear you are taking medications to assist with the seizures… im not sure where you buy these bracelets but sure someone here can assist further… God bless! ---
**Author:** ![Nana](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@Nana](https://avmsurvivors.org/u/Nana)\ **Post date:** [November 17, 2025, 5:47am UTC](https://avmsurvivors.org/t/please-share-any-advice/31493/7 "2025-11-17T05:47:37Z")
> [@JD12](#): > > I have attached a link for you to consider. I use one know on my watch strap that has my name, date of birth, and my wife’s name and phone number. I have used other types of bands to that identified contacts. Now it is mostly in case I crash my bike as I ride a lot, but also should I ever have a second seizure(hope not) while in public where no one knows me. The watch strap tag works great. Wow, thank you so much☺️