Posed two questions with no answers

Does no one really have any answers? How about an easy one, is it okay to use ice or heat on the blinding headaches i am getting from these AVM's.

Hi maple. Every AVM is different so every recovery time is also different. I will tell you that the brain heals SLOWLY. However, it can heal!
Headaches are quite common. I cannot tell you which is better heat or ice…I would experiment with one then the other.

Thank you:-)

Actually both will work. My son does use cold to help. He keeps his room ice cold. He also uses steamy heat like taking a hot bath or shower or a wet washcloth that we nuke for about 25 seconds. He usually trades off between hot and cold.

Hello Maple. My daughter is soothed and relaxed by warm baths. She could take several a day. But when she’s not in the tub, she wants cold water or a cold washcloth. So experimenting is probably the best bet. A dark place where you can close your eyes might help too, if you haven’t tried that.

Headaches are common for AVM survivors. If they’re bad, your neurologist may have some ideas to help manage the headaches.

My guess is anything that you can do to lessen headache pain is good. Hot, cold, soft music, lites off, yoga, whatever.

I would suggest checking with your MD before taking OTC pain meds.

Best wishes,
ron, ks

I have two ice packs that I rotate so they stay cold. They help but not much.

Ice usually works best for me! Good Luck!