Possible AVM dx what do I ask?

I went in for an MRI because I have had ringing in my ears (dx as tinitus) for 6 mths with no relief. The MRI showed no tumor to cause the tinitus but did show possible AVM, follow up with more tests.

This was Friday, I have had to sit on it all weekend.

Who should I go see first (I don't need referrals)the PCP? the neurologist? the specialist neurologist? a vascular person?

The ringing in my ears, anyone else experience that?

What does a bleed feel like? Will I know if I have had one?

What should I ask?

Thank you. thank you
Cathy

I had a bleed and everyone is different but if u had a bleed like mine yes ud defo know!! I dnt remember the first few months o I ft know what it feels like If my bleed was during when I fink it was I was just being sick and having bad headaches and just wanted to sleep all the tym…(might sound confusing but we know I had bleed but just not sure of the exact dates yet)… But I’ve gt a lot of disabilitys nw ( sleekness down right side,can’t balance , problems with eyes and deaf in 1 ear) so every1 is different but yes ud know…do you have any other symptoms x

Hi Cathy. You might find this link interesting…http://www.avmsurvivors.org/forum/topics/questions-for-my-neurosurgeon?xg_source=activity
If you have an AVM…try and get more than one opinion.
Most of us describe a a bleed as the Grandmother of all headaches! Best of luck and please keep us posted!