They didn’t do a follow up at Barrow?
Hope u feelin well
They did
They said previous doctor used too much Onyx
And increased the blood 
flow
That was the indicator that it was not obliterated 100%
He covered “most of it”
And left “a small part”
They maxed out what they were able to use as a permanent fix in me - he said a tad over 3cc’s total
No left over AVM post resect?
Well, you’re typing alright - keep going! My 
r with u
Well,
What we have in common is that I thank god - I had the hemorrhage - tough to type or say, that’s for certain
But, it was life changing & apparently it is what I needed - then BNI was actually able to go in & fix this darn near on a dime - during the worst parts of this “pandemic” - if anything changed in my path, everything would have been different
And now - like I mentioned somewhere else on here - my gi issues are worse than being post hemorrhage & embolization
gastrointestinal
I have been through more imaging for my “gi” issues than my head - maybe 6 CT’s, one MRI & one ultrasound - So far, “they” have found nothing at all - I just ache bellow the right side of my rib cage
That’s awesome when did they performed craniotomy? Even with covid awesome.
It was a Onyx Embolization
A resect seem so much more intense -
It just does, to me. . . The embolization alone was the most intense thing I have ever felt my life - since it was as paired with my hemorrhage. . . I never thought the outcome could ever be so good
Just to hop in on the gi front, I lost my gallbladder, appendix, and part of my small intestine due to the shunt and other complications. Just saying, these AVMs are a beast!
From what I understand first it bled then you had GK then bled again the craniotomy to take it out for good?
DR. ROBERT ROSEN FROM LENOX HILL. I SWEAR BY HIM! He has performed my 15/20. Last on 11 years ago and mostly asymptomatic. Read my story and hang in there. Originally, doctors thought I had stomach cancer and a few months to live. Without Rosen, no me, my daughter, and two grandkids!
I hope everything went well and please take care and look after yourself so you have time to recover… God bless!
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Thank you Adrian.
For now my symptoms is my right hand index finger hurts A LOT.
Right after craniotomy my right arm was completely numb they did a CT scan and brain was OK. I am doing 2nd session of accupuncture tomorrow. I am also learning how to write lyrics and use DAW software to compose music. I really don’t want to have a 2nd seizure. I am also with physologist because of COvid + failed embolizations and now fear. But over all happy they removed the AVM. Now I will do a 20 point EEG for 3 days ever 6 months to see if everything is Okay, I hope everything is okay, it should.
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Good to hear you’re slowly getting there… what DAW do you use as I also use some in my free time… I use Logic more than anything but have pretty much used them all… God bless!
I am using Ableton Live 11
Music and worshiping God has been my recovery
And also assemble computers again do fun stuff I enjoyed before so I can use my hand
The pain/numbness is going away 3/10 now
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Yes Ableton is a great DAW to use and I agree making music is such a great release as you go into another zone and forget about everything else… God bless!
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I’m going to worship school in Redding California to learn how to sing
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How are you feeling? Glad to see you back, you’re quite a ways away from your surgery date.
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