Queston for those untreated AVMs

Everybody,

My daughter’s AVM ruptured in 2009, requiring an emergency craniotomy. She’s had two subsequent craniotomies to remove residual pieces of the AVM. She had a 1-year post-surgical angio last fall.

There seems to be disagreement among doctors about the results. The radiologist report said there is either more residual AVM or a small regrowth. Neurosurgeons say there is nothing wrong and we don’t need to even check it again for a few years.

We recently received a report that shows the official diagnoses, which included “AVM remains, though no further treatment is planned.”

Does any of that make sense to anyone?

Take care everyone!

– Tina

Hi Tina...i exactly know the emotions n helplessness you are going thru..when receiving contradicting feedback from doctors(whom common man is helplessly dependent on)........

with regards to You taking the next step on making a decision whether to treat the residual AVM or not for your daughter... you have to finally surrender to one doctor...so amongst the doctors u have visited ...n the feedback u might have got from you friends n society ..u will have to trust that ONE doctor.....

If u wait for all the doctors u visit to give similar suggestions or agreeing to each others diagnosis..i am afraid in AVM cases it doesn't seem a practical reality.... my parents also went thru this same trauma of visiting atleast 5 doctors...all super-specialists in the field...but had to finally take the risk & zero in on one doctor..

Wish you good luck. Take care.

Santhosh
Bangalore, India.

Hi Tina,

I agree with what Santhosh said. The trick is finding a dr. you can trust. Personally, I would not know why they would want to wait to treat it. Considering her history and all. I could see monitoring it for a short period of time, then decide what's best. That I could understand.

Ben