You sure have had quite the battle. I’m really disappointed if your Drs are not being completely up front and direct with you, that is completely unacceptable. I haven’t experienced necrosis but did have some swelling about 6 months post gamma knife treatment but o to the point of requiring steroids. I was fortunate.
Hopefully another site member is able to provide some info for you. We had a member here who had a real battle with swelling after Cyber Knife @amcoffey. I have included one link below. I know she was successful in dealing with the swelling but I couldn’t seem to find that portion.