Right cerebellar AVM

When I was 14 my AVM caused me to get hydrocephalus. At that time (1987) they could obviously see something on my CT scan but told me it was a birthmark!

I’m in the same boat as you. My AVM ruptured in 2003 and craniotomy was the only way to go. Mine also just ruptured, no signs or symptoms. We’re both still alive which is miraculous. The survival rate is probably much higher now with the new technologies. I don’t remember anything about what happened. I had to be told about it through my doctors and my medical records. There are plenty of great doctors out there and I’m sure your recovery will be quick and back to normal in no time.

Welcome to the family & sorry to hear about your AVM diagnosis.

I was 30 when mine was discovered & it was located on my right frontal lobe… unfortunately mine ruptured a month before my neurosurgeon appointment & they had to do surgery to remove it.

As scary as it was it was the best thing I ever did cause I am AVM free & slowly got my life back… it’s never an easy journey but it’s definitely something that will make you stronger & look at life much more different in a positive way… please keep us posted on your journey & best of luck… God bless!