# Support groups/events near NJ

**URL:** <https://avmsurvivors.org/t/support-groups-events-near-nj/31989>\
**Category:** General\
**Created:** [April 15, 2026, 10:14pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989 "2026-04-15T22:14:34Z")\
**Posts on this page:** 7\
**Page:** 1

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**Author:** ![mikefazz](https://avatars.discourse-cdn.com/v4/letter/m/87869e/32.png) [@mikefazz](https://avmsurvivors.org/u/mikefazz)\
**Post date:** [April 15, 2026, 10:14pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/1 "2026-04-15T22:14:34Z")

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I am 28 with a spinal avm. Feel very alone in my journey. Is anyone aware of any groups that meet around the NJ area? Thank you!

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**Author:** ![TJY](https://avatars.discourse-cdn.com/v4/letter/t/9fc29f/32.png) [@TJY](https://avmsurvivors.org/u/TJY)\
**Post date:** [April 16, 2026, 6:03am UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/2 "2026-04-16T06:03:36Z")

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i live in PA and grew up in NJ! i have a pelvic avm with 15 surgeries. id be happy to speak with you.

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**Author:** ![tonmiletrader](https://avatars.discourse-cdn.com/v4/letter/t/a88e4f/32.png) [@tonmiletrader](https://avmsurvivors.org/u/tonmiletrader)\
**Post date:** [April 16, 2026, 3:37pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/3 "2026-04-16T15:37:20Z")

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Hi Mike - my guess is this is such a rare condition it might be tough to find a local support group. Many of us here are always available for direct conversation or - whatever form of support we can provide.

Mike

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**Author:** ![rbar](https://avatars.discourse-cdn.com/v4/letter/r/898d66/32.png) [@rbar](https://avmsurvivors.org/u/rbar)\
**Post date:** [April 20, 2026, 1:24pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/4 "2026-04-20T13:24:46Z")

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Hi! I live in north Jersey. In February of this year I had a Uterine AVF as a result of a second trimester miscarriage. I have never heard of support groups in this area but would love to hear about it if you find one. It’s been a lonely road figuring out my future health/fertility journey

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**Author:** ![mikefazz](https://avatars.discourse-cdn.com/v4/letter/m/87869e/32.png) [@mikefazz](https://avmsurvivors.org/u/mikefazz)\
**Post date:** [April 20, 2026, 4:45pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/5 "2026-04-20T16:45:32Z")

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Across other social platforms, I have heard the same thing. I am going to work to start a support group if I cannot find one for those in the area. I will post again if I find/start my own

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**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\
**Post date:** [April 21, 2026, 11:48pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/6 "2026-04-21T23:48:24Z")

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We have had get-togethers in England for AVMs in London, Birmingham and Nottingham, as far as I remember. Since this is a rare condition, you tend not to find many people in the same city but it is perfectly feasible to arrange meetings, including through this forum.

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**Author:** ![DickD](https://avatars.discourse-cdn.com/v4/letter/d/9de0a6/32.png) [@DickD](https://avmsurvivors.org/u/DickD)\
**Post date:** [April 21, 2026, 11:49pm UTC](https://avmsurvivors.org/t/support-groups-events-near-nj/31989/7 "2026-04-21T23:49:35Z")

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We do actually have an older conversation about meeting up in NJ. See here:

> [@Events near NJ](https://avmsurvivors.org/t/events-near-nj/22923):
>
> Hey guys do we have any events near New Jersey i would like to support and do something to help the cause and maybe share stories and experiences with people