# Surgery post-sclerotherapy

**URL:** <https://avmsurvivors.org/t/surgery-post-sclerotherapy/31535>\
**Category:** AVM in Extremities\
**Created:** [November 21, 2025, 12:34am UTC](https://avmsurvivors.org/t/surgery-post-sclerotherapy/31535 "2025-11-21T00:34:32Z")\
**Posts on this page:** 1\
**Showing post:** 3

<div class="post-metadata">

**Author:** ![RLA](https://yyz1.discourse-cdn.com/flex027/user_avatar/avmsurvivors.org/rla/32/15985_2.png) [@RLA](https://avmsurvivors.org/u/RLA)\
**Post date:** [November 21, 2025, 1:46pm UTC](https://avmsurvivors.org/t/surgery-post-sclerotherapy/31535/3 "2025-11-21T13:46:37Z")

</div>

This sounds a little bit like FAVA to me. They thought I had and avm, too, and sclerotherapy never really helped (but medication: sirolimus, then alpelisib, and now a clinical trial for RLY-2608). I’d do a little research on FAVA and see if that might be what you have.

---

_[View the full topic](https://avmsurvivors.org/t/surgery-post-sclerotherapy/31535)._