Yes! I finally found it! Spinal AVM's are considered a Spinal Cord Injury too

For years I've been trying to look for help...
And frankly, due to many feedbacks, I felt like if I did not experienced the trauma of a Spinal Cord Injury due to an accident, I could not qualify for anything.
As many of you,we are working people, waiting for procedures, not driving, no help, etc. etc. etc.

This time the Christopher Reeve foundation responded to my phone request. They send me a lot of info that I am sure will be useful for most you.
There is different resources and info that I am sure will help.
Here is a copy of the message received + all the documents (including grants info)that will give more than one the hope of a life with dignity and independence!:

Thank you for contacting the Christopher & Dana Reeve Paralysis Resource Center (PRC). In reference to our phone conversation yesterday on funding sources I am going to attach our grants for individual’s fact-sheet to this email. This document will list various organizations and non-profits that do provide funding to individuals in need. Since each organization has its own mission, eligibility requirements, and application process, you will need to contact each organization directly to learn more about its program and current funding. The following is a link to our grants for individual’s resources.{173bca02-3665-49ab-9378-be009c58a5d3}/GRANTS FOR INDIVIDUALS 1-10.PDF

Our special needs planning fact sheet is attached to this email as well and has information about trusts. Please see our special needs planning fact sheet here:{173bca02-3665-49ab-9378-be009c58a5d3}/SPECIAL NEEDS OR LIFE CARE PLANNING 2-10.PDF

For resources in your state, I added our Florida state disability resources document. Listed below is also a link to view our state factsheets online.

You may also want to contact a local independent living center to see if they can assist with any resources. To locate a center near you I am attaching our independent living center document. Independent Living Centers are typically non-residential, private, non-profit, consumer-controlled, community-based organizations providing services and advocacy by and for persons with all types of disabilities. Their goal is to assist individuals with disabilities to achieve their maximum potential within their families and communities.

I also attached information related to AVM along with our spinal cord tutorial. Listed below will be a link to the online version of our Paralysis Resource Guide. The Paralysis Resource Guide addresses many topics and issues specific to spinal cord injury, paralysis, and other related disorders, and secondary conditions.

I hope these materials are of assistance. Should you need any further information, please do not hesitate to call me at 1-800-■■■■■■■■ or reply back to this email.

All the Best -

Jennifer Hatfield
Information Specialist
Christopher & Dana Reeve Foundation
Paralysis Resource Center
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
(800) ■■■■■■■■

The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.

(Please do not alter the subject line when replying to this email. (qrid=65024))

57-Independent_Living_1114.pdf (127 KB) 58-Grants_for_Individuals_914.pdf (128 KB)
1 Like

Thank you for sharing this great informations !