Thank you so much for this website and the discussion forum, thank you so much to the members who has very good knowledge on various topics related to AVM.
My daughter had subarachnoid hemorrhage on 3/23, she was in hospital for 3 days in Lurie Children hospital in Chicago, at that time they could not find the source of bleeding in the brain.
Later follow-up MRI scan of spine on 5/13/2016 showed a AVM on the spine at C7. it was confirmed by follow-up angiogram. Right now doctors (dr Tadanori Tomita - neurosurgeon, Dr Ali Shaibani (IR) at Lurie Children are coming up with a treatment plan for her.
I need your help in finding the best surgeons , Interventional Neuroradiologists for spinal AVM to get second opinions and also possible treatment. We are ready to travel to get best possible treatment for her and also hopeful cure from this.
Can you please suggest 5 doctors (places) I should send the records for second opinion, please suggest how to reach their offices directly.
sorry to hear about your daughter,hope everything goes well. i have my son 4,5 years old with a medium AVM in his brain, iam searching also a doctor specialised for children. regarding my search results. if the treatment is embolization i would recommend Georges Rodesch in Paris specialised in children, if is open surgery is very good Dr A, Valavanis in Zurich, Mr. Myseros in Washingthon hospital suggest me Dr Chistos Tolias in London.
Hello - I just had my Sylvian Fissure/Frontal AVM surgically resected a month ago by Dr. Spetzler at the Barrow Neurological Institute. He did a fantastic job and I am feeling incredible at this point. He is one of the most respected surgeons for AVM's and I highly recommend him. They have a second opinion program and are very upfront with their recommendation. Best of luck.
Hi dear,
I have the same AVM as your daughter, read my profile for more details. Be sure that doctors are not always right.
You can contact Toronto Western AVM hospital and Juravinski Hospital (Syberknife)In Hamilton Canada or Toronto Sick kids.
I’ll have my first Syberknife treatment soon and I’m very helpful for a positive result. Keep in touch with me !
Wish your daughter a speedy recovery and a great health!