Oh Ron,
You have my family pegged so well. I already have health and financial POA and it has already come up by my sibs that I have “complete” control over my father. Its funny how no one could take the time to obtain the POA or even asked who was paying his bills when I asked them to and he was still in the hospital. My brother who has decided that my father is already dead is the executor of his estate. I need to find the time to take him to an attorney as he has expressed on several occasions his desire to change that. I hope my father lives a very very long time because my happy pills aren’t working quite yet and I am not ready to deal with the family squabble.
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Thank you Rose. Its good to hear that you are doing alright despite leaving everything alone. I do believe that’s what my father wants as well. If I could leave my small children and take him to a doc who would be open and honest, I would in a heartbeat.
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You have quite an encouraging story Sally. Thanks for sharing with me.
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Bealky, I am open to any and every bit of advice I can get. As a mother of seven, I have learned to be flexible and go with the flow. I now have many questions to ask the neuro when we get in to see him and hopefully we make the best decision for my father
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Michelle. I just wasn’t to send you hugs for your care of your father. I’m sorry your siblings are being so difficult about this. We all just do the best we can and it sounds like you’ve had your father’s best interest in mind. Bealky has some excellent points. Hang in there!
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*want
Thanks for your support Renee. When I was googling AVM's after my dads surgery, I was not able to see any negative results at all. Being on this support group has made me see that there are others struggling as well.
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I had my SAVM rupture during an embo.they can rupture on their own. mine did twice with no warning. I am way younger than your father and it is hard to be in your shoes but I can kind of relate. my grandfather has dementia and a brain tumor pushing on his frontal lobe. He doesnt know where he is, isnt eating and is just no quality of life. sadly we are all hoping he passes sooner than later for his own good and 5 of his children don't care or visit. it's all on her. My point being, should he pass during a procedure, it may be best for him. I'm sorry your siblings have let you down. Thats the saddest part.
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Hi Michelle
I am 51 now. I had 2 bleeds 3 years apart, most recently july 15 2013. Multiple AVM removed from upper cerebral brain in aug 12 2013. Only after another angio did my surgeon find one AVM still untouched. Now I am scheduled for another brain surgerey mid jan 2014. MRI did not pick it up. I am so thankful of the help that Rehab and family give me. Your father is so thankful of the help you give to him. Stay strong for you father.
Jack
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So sorry you have to make these decisions on your own and that your siblings are burying their heads in the sand. Don’t let them blame you for any decision you make for your dad’s best interest. The angiogram may be the only way to really get a better view of what remains and can help with an educated next step. Please put on your oxygen mask and breath first or you won’t be able to help your dad at all.
Deb
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Thanks John. I’m not ready for him to pass and other than his a-fib, he seems pretty healthy. If he did go though, I know I did all could for him and will not be the one with regrets.
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Good luck with your surgery. You will be in my thoughts and prayers. Rehab is a wonderful thing:)
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I think sometimes I hold my breath and forget to breathe. I just wonder if he would have let the AVM alone would it have been alright? His gait and speech were off but he walked around for 6 days with it before going to the doctor and the blood was starting to dissipate.
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Hi Michelle. First of all, I would like to say you are an amazing daughter and may G-D give you strength so you can continue taking care of your Father. Please keep in mind that with an angiogram, there is a chance of a stroke. But, also, you have to consider at your Father’s age, if another embolization is needed are you willing to put him through another brain surgery at his age. If, not, then what would be the use of doing another angiogram and having the risk of a stroke. I wish your Father a quick recovery and a very Happy & Healthy New year!
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My boyfriend was hoping it wouldn’t bled and then it did and then again. When they did the embolization it bled again and they did the surgey immediately. I don’t think the AVM can be trusted not to bleed eventually.
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That’s what I am worried about, another stroke. I am not willing to have him suffer another setback from another surgery either. Thanks for the compliment and the insight. 
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How long did the surgery last before it bled again?
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It bled three times before surgery. It’s gone now. The last angiogram after surgery showed no more AVM. Now in recovery for a week. Speech is coming back slowly just speaking one word answers. but still no movement on his right side.
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So the embolization is probably not a permanent solution? Glad to hear your boyfriends bleed stopped.
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I think it’s supposed to be removed after embolization but I’m not a doctor…I only play one on TV. Lol. My boyfriends AVM has been removed
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