Yesterday morning my girlfriend woke up to me having another seizure and bleeding from the mouth because I bit down on my tongue and now I can’t drive until December. My boy knows I wasn’t feeling well and has been comforting me all day
Sorry to hear about your seizure. That is really unfortunate, hopefully that moderates for you. Great picture of your dog. I believe they know when we need them. Mine was only 5 months old when I had the bleed, he was my best buddy when I got home. Sounds like you have good support, that helps. Take Care, John.
Hope your feeling better bud, great pic… God bless!
Dog lover,
I think sometimes the reasons I’m here is bc of my animals. Used to have 3 cats and dog now 1 cat and new pup. Had cerebellum and hemorrhage in 2019. Five surgeries later my life totally changed and now disabled and deal w bipolar but dog makes my days good mostly and this you and I aren’t alone lol. When we want to b and I want to b when I’m at despressivr stage migraines dog only thing keeps me going … no you aren’t alone!!
I couldn’t agree more tcuellar.
I know for myself, if I really just sit down and think about it (the neuro-journey) I can drag myself way down. Having another living being takes us outside of ourselves. My little mutt has a routine and I have to keep that routine or he starts hassling. He starts by eyeballing me, if I don’t look at him, he moves so he’s in my line of sight. If I still ignore him he starts huffing and puffing like a spoilt kid. If I ignore him further he starts pushing his nose into me. His nose is cold and wet and if there is any exposed piece of skin he’s sure to give it a push and you simply can’t ignore that. Damn dog
My wife got him into this routine of twice a day and he makes sure he gets what he wants. Damn Dog.
And as much as I say ‘Damn Dog’ I’d be pretty lost without him, wet nose and all. He knows when a bad day is a BAD day, he’ll try to get me going, but on those days, he knows (even better than me sometimes)
Merl from the Modsupport Team
I don’t know why or how but I really needed to be reminded that this group exists today. I’m no longer with that girlfriend and she retained ownership of the dog and I’ve been getting a lot of therapy and got discharged from my 10 hour a week program recently and am starting a new outpatient therapy on Tuesday but life is just so hard for me right now because I haven’t graduated, I can’t drive myself anywhere, I lost my girlfriend and my dog, and it all feels like there’s nothing g I could do to stop it. I can’t control my brain bleeding or being epileptic or my homonymous hemianopsia. I’m just so mad and sad and I feel as if I’m feeling every emotion.
We are here for you, and we hear you. Im 54 and have been through some really crappy things in my life, and it always seems that we don’t get clipped by one thing at a time. It always seems to be an accumulation of “things”. I have recently realized that I needed some help as my usual managing process wasn’t quite keeping things in check. The fact you are seeking assistance is vital, the biggest step being to realize we need a hand. For me the next step was being willing to accept help. We have been effected in various ways by AVMs, and while all different I think we get the wide spectrum of impacts on the individual and the relationships. Take Care, John
Hi @DogLover34, we are here for you, we hear you. I am going through my physical therapies every week, sometimes I see and feel progress, sometimes I don’t. We all go through tough periods in our life, but we get up and try again, because that is what we do. I am 44 years old now, this coming Tuesday it will be 4 weeks since my craniotomy on my Cerebellum. Every day I push, and every day I thank God for the opportunity. I struggle to walk properly. I will tell you, when I was 12 years old, I went through Guillain Barre Syndrome, or GBS. I was completely paralyzed for 6 months, I had extensive therapy for 1 year, and learned how to walk, write, exercise and do normal kid stuff again. My right calf never became strong, but my body compensated I lived a normal life. I always looked at going through GBS at a young age as something that built character in me. Never in my life would I have imagined going through a life altering experience again. Until 2 months ago I was diagnosed with my AVM. Nothing has been easy, but I have been given a chance to step up again and try, stand up and be present.
You are building character now; you are young, and you have a purpose. You are not alone; we are many worldwide.
Know that we are thinking of you and sending good vibes and prayers.
Best
Francisco
Dog lover- and least you feel lol … I pay good money $150 for 50 minutes to feel but alas since disabled now can only afford non- private therapy. No this not a competition but I too get mad then sad then piss then mad against (think ya get the gist ). But I have learned I have to realize “maybe” tomorrow will be better. It usually isn’t lol… but sometimes my self esteem gets a kick in the ass and I feel good again. I lost my dog of 8 years to cancer and later got a corgi….b4 this dog and AVM never drank so much now never touch the stuff. I tell the dog to be good daily while I go swimming or volunteer work when can w disability. Sometimes I can’t bc bipolar puts me down… your never alone. Keep coming and telling us your feelings.
I have some kind of personality disorder but never found out what it is. Perhaps i do some research soon after i feel better. I am not doing well at the moment. Just got out of the hospital. I had a stupid colonoscopy done and they found a huge polyp they had to carterize it. Now i have to go back again to have another polyp removed. They spread these procedures out like that to make more money on my insurance. But i usually take a month to recover from any kind of procedure/surgery, etc. I blame it on my avm.
Hello.Do you see the white cat on my profile? Thats what my pet would look like if i was allowed to have one where i live.
Sorry to hear about your dog. I had one long ago part german shepherd. I miss him terribly. Yeah i believe we all have our good days and bad. I did read somewhere online that Avms can cause behavioral issues. Maybe thats what is wrong with me. But yeah tomorrow is another day.
Hi Dog Lover, I’ve been in a depressed state mentally lately due to 2 bad seizures and a car wreck. So you’re definitely not alone about how you’ve been feeling.
Maybe you should focus on contentment not happiness. You’ve given me some hope by sharing your story. For me a different perspective is invaluable when I’m struggling. Thanks for that.
Maybe it can give you some joy to be helping others like me. It may also give you a sense of purpose and direction to get you through feeling alone. Greg
Bless your heart TJ
it brings tears to my eyes reading you say that I gave you hope
I feel like it’s been forever since I’ve been on here. Reading through past posts and messages really made me happy and tear up a little bit because this community and space has done so much for so many. I am writing this morning to see if there’s anyone else out there who went through their medical situation, whatever that may be, with a partner and that partner ended up leaving them and how they were able to move on and recover. Naturally any relationship of this sort is predicated on a trauma-bond because of how scary everything is/was and no one has to stay in a relationship and I understand that. However it was and still is kind of devastating for me as she was my first love and we rescued a dog together and moved in etc